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EXPERIENCES > DB'S STORY > Chapter 3: Life in 2004
I am a 44 year-old male living in London. My name is David but when I say it over the phone, people mishear it as Mavis. So instead, I use my middle name, Paul.


Read my latest update in 2007 New Year
Message Board Member
Paul is a regular poster on the RDOC Mouth Cancer message board. To chat with him and other cancer patients, join our free online support group here


Well, it is now the end of March 2004
and things have not been too bad. However, my teeth have been giving me a lot of problems.

If you have read this far and not had enough, then here goes! I bet you're thinking by now that "this guy can really go on" but I just want to highlight the importance of diagnosing Cancer at an early stage when it can be treated with greater success and less treatment or complications afterwards.

This is basically aimed at you people out there who have that LITTLE white lump in your mouth and don't know whether to get it checked out or not. I had my lump checked out several times, over many weeks, at my GP but it was my Dentist who sent me to the local Whittington Hospital for a biopsy.

The biopsy was clear thank god and I went away celebrating with a peace of mind, only to have lumps appear in my neck during the last week of my holiday (explained earlier here).

Well the Cancer had reached my neck by then and there was no choice but to have radiotherapy which, apart from other things, left my teeth rotting with constant pain and abscesses; my weight was down to eight stone and there was no sign of recovering. The dentist was scared to remove my teeth in case of an infection (I say, there is a fancy word!) in my jaw.

So here I am on strong painkillers, teeth falling out at the most unexpected times and the way it has left me looking... well, you can judge for yourself!

All I can say is that IF you have any DOUBT about a little lump, or big one, then go to your nearest Max Fax as soon as possible. I had never heard of them until I was referred, after many calls, from the Eastman Dental Institute in London.
  teeth falling out
[Photo: Problems with my teeth
]


[Photo: Taken 26th November 2004 outside my second home]

I have to say that the Max Fax at the UCH London is EXCELLENT. I cannot repay the kindness of the doctors, nurses and receptionists.

Here is a personal joke:
I was on the London underground (tube) looking around, as you do, when I noticed something odd. A lot of people appeared to have mouth or jaw problems on this train because they were all chewing their food like me! So, I started wondering if there was a convention that everyone else was heading to, that no one had told me about. Or perhaps I was setting a trend! I thought about it hard and then it hit me "You idiot Paul," I thought to myself, "they're all just chewing gum!"



04 coming to an end
Well it is now December. I had thought this was going to be my best year but alas no the cancer complications keep coming with a vengeance. There are also other physical problems but I will stick with the main issue. I am saying here what I want to say and if anyone is offended or feels I am crass or pathetic please let me know (He He)

Well going back to the beginning, I left my partner of many years to come back to live on my own. Although not distressed about it, I am sure very lonely. I hate the way people see me and look at me. My pensioner neighbour thinks I am her age and says to me ‘people of our age!’ I am only 44, ok 45, for Christ sake! When I speak or try to, people’s faces change - they think I am a nutter!

I have been to the Max Fax Dept most weeks since March because of my teeth or biopies. A few weeks ago, my consultant Mr K (a great man) and his fellow doctors said that my Cancer site did not look right and they need to biopsy again! It’s been a dilemma, since after the last biopsy I booked to go on Holiday to India on 9th December . I cancelled the holiday yesterday as I am just too damn weak and my teeth are so painful & sore. India’s the last place you would want to go if you are unwell! Shit to this Cancer! I am afraid it beats everyone sooner or later and no matter how positive you are, it comes back to haunt you.

I have already been informed what will happen to my teeth sooner rather than later and I do appreciate Mr Barrett’s honesty but, God, it will be another long and painful procedure!

I am hoping to get the courage and confidence tomorrow to say look, enough is enough, how long have I got without anymore treatment and let that be the honest truth!

How can they talk about quality of life when I don’t have one anymore! Like many on this site, we just put on a brave face.

People do not mention faith much on here but I am going to. I do believe in God and an after-life and often go to Church to talk to my Mum, but deep down I am praying that she cannot see what’s happening to me physically and mentally. I have not really ever thought of why I got the cancer. I don’t blame the Dr or the Gp, so why blame God for my illness? I think it was just bad luck, as simple as that.

I have only really a few people who have stood by me. I dare not tell most people now that another biopsy is imminent as they are so scared for what, me or them getting cancer, I am not sure! I have only respect and admiration for all the help from some wonderful people over the last few years. I know it would have been a lot worse without them (from the Consultant to Social Sevices, receptionists, nurses and the cleaners who had to clean up after me). Not forgetting my dear friends Eric, Laurie, John and Vickie & Ric.

I wish you all your wish for the coming year. It can’t really get as bad as this year, can it? (God, I am such a cheerful individual!)

Paul








Read my latest update in 2007 New Year
Message Board Member
Paul is a regular poster on the RDOC Mouth Cancer message board. To chat with him and other cancer patients, join our free online support group here