I had tongue cancer 2 1/2 years ago and doing fine but I still have my feeding tube and when Carl talked about vomiting it dawned on me that when I was in rehab for 3 weeks just after having my peg tube (which I absolutely can't stand)every time the nurse hooked me up for my feeding she was no sooner out of the room and I was throwing up. After 3 weeks the dawn came and I thought that it might just be the smell. Well........I shoved kleenex up my nose and that solved the problem. They put me on Nexium but the insurance wouldn't pay for it so now I take Prevecid once a day and I now am down down to 1 can a day. I'm thrilled to death because also my taste is getting better, I'm eating better, but still no saliva. So.......there is a light at the end of the tunnel DON"T GIVE UP. Try the kleenex and let us know if it works.......hope it works.

Hi Joan, welcome to the forum. I never had a peg but with everything I've read about them I'm glad I didn't. Thankfull for small mercies and all that. Hagg.

Dear Joan, Hagg and everyone else who have problems with their peg tubes,

I have had a peg tube for the last eight years and thats my only line to survival. Without offending anyone as each one has a different metabolism, in my case I have never ever faced a single day with my pegs ( I am on my third - wish it was scotch though!!!!). I was put on the peg feed and I began feeding through the same withen an hour of it being inserted. The first time it was inserted was as it is done normally - with the endoscope going in through the mouth and all that gagging. That wasw the best tube I had and lasted out almost two years before, the doctor got fed up of seeing the way it was - taped up from all sides. The next tube too lasted me a good two years, till one day at a meeting, I felt my t.shirt all drenched and felt the peg had opened up and when I reached inside to close it - my hand came out all red with blood. That was pretty scary. The next tube too lasted a good long period and also one day during a shower, it decided it had enough of me and ooops! it popped out and the one I have on now is looking pretty good.

Well, that was the story of my "peggies". The main issue is feeling all puky and then puking - I never ever had this problem. Initially when it was first put in, I would get a reflux of what I had "eaten" and could actually taste the food. I recall that Ensure would make me sick and so my dietwas changed to whatever I wanted -soups,milkshakes and if you can believe this - even hamburgers and pizzas - well pureed in milk and strained very well and poured into the tube. I was and am still using the Bolus method and at times when the feed is a bit thick - I use a plunger to push the feed into my stomach.

Another point about mantaining the peg - I do flush it after every meal. However, I shower very normally as if "peggy" was not there. I then clean the area (which has already been washed clean with warm water with dettol) with my towel and then take a nice rectangular piece of gauze and put some betadine ointment on it and insert it under the lock pressed against my stomach. This keeps the peg from hurting the stomach as well as keeps the area desinfected.

Hagg - as you put it you did not have the peg and thanked the small mercies - here I am glad I had the peg and thank it for all the mercies!!!

Take care and happy pegging (ooops!!),
love to all,
Ananth

Still glad I didn't have one Annath . The nearest I came was being tube fed for ten days after my reconstructive op and that did my head right in. Couldn't get the cheeseburgers to go down it, even when I tried flushing them in with vodka . Sorry to make light of the subject, keep smiling. Hagg.

Hagg,
This reminds me of the time when a bottle of wine was transfered into a Pepsi pet bottle as the wine bottle had some problem. I had no idea that there was wine in the house and neither did I know about the wine being in the Pepsi bottle. I recall that night when I went to the fridge and saw the bottle of Pepsi and sat down in a place where there was not too much light and poured the whole thing right down my peg.

BOY!!!! What a kick and then what a hangover. Thats when I decided to keep away from Pepsi as in any case "things go better with coca cola!!!!"

Love to all,
Ananth

hi joan
welcome to the site,sorry to hear you are having problems with your peg,i am vomiting about 12 times a day and thats no lie,but i was doing that before i had the peg inserted so i dont know whats causing mine,i hope you get some relief soon,this week has been a real bummer i went into the bank to see the manager and started reaching mind you that helped because he gave me what i wanted and couldn't wait to get me out of his office i only ever dry reach but i think he was worried about his shag pile carpet lol. then i went to asda to do some shopping and while me and hubby were packing at the checkout it started again!anyway joan all the best in your journey love shirl xxx