i just would like to say thank you to all your kind words, i am prepared i hope for the results, abit disappointed as oncologist cant see us until 11th aug, i rung his p.a and she said he wants to deal with my sons case himself and thats the earliest he can do but she will ask if can be brought forward. abit of bad news my son has complained today of a lump appearing on other side of his mouth which is how this first one appeared, it may just be his glands are up but not convinced, will be calling oncologist monday if still there. i will keep you all posted and would just like to say its really nice to hear from people who understand and tell me honestly what they think. i hope all of you are well or are getting through your own battles of this horrible disease. xx

Hey Nicki
just wanted to say that you are right to keep pushing for that appointment.If your son does in fact have osteogenic sarcoma in the jaw,then treatment needs to be started as soon as possible to get the best possible outcome.You sound like a very grounded,focused Mum and i think expecting the worst is faairly normal.Lets hope and pray you get a pleasant surprise when eventually you get that diagnosis.

Hi niki
thinking about you today praying for good news.
xxNoreen

hi cookey, i'm so glad i have someone to talk to who is being upfront and honest with me, all i get from people is well the first biopsy is clear so cant be cancer but why would they do the second one, like you pointed out they probably didnt take enough tissue or got the cells which are cancerous. i think i know he has it as in his notes they had put sarcoma down as ct scan diagnosis. i hate seein my son go thru the biopsies and to think what he may have to go thru if he has got sarcoma. i will be callin oncologist monday so will keep you posted and thank you soo much for your honesty and advice... nic x

Nicki, you asked the question Why did they do a second biopsy? My daughter has recently undergone 2 tongue surgeries, the first one did not come back with clear enough margins i.e enough good tissue surronding the cancer. The second op proved that they had got it all. Hope this helps and pray that all will be well. However when its your children the anxiety and worry is awful. We are only too aware of what you are experiencing , our thoughts and prayers are with you at this time.

Best wishes to you and your family, David.

Hi David, i'm sorry to hear about your daughter and hope she is on the road to recovery, its so hard to deal with when its your child isnt it. with my son they havent actually told us yet its cancer so we still dont know, i have a good guess it is as we was referred to oncologist really quickly and i must admit i was shocked when first biopsy came back clear(or inconclusive) but this time we should get clearer picture . we just wish they would be abit more upfront with us. i keep telling myself it cant be cancer but a niggly doubt is in my head. did they diagnose your daughters straight away? thanks for your reply

Nicki, as a parent you have a right to know what they are thinking. Please be pushy. My daughter was diagnosed on May 14th after two previous biopsies proving negative. The third one proved positive.I would take heart in the fact that the first biopsy was inconclusive, seems like they didnt have clear enough margins of good tissue. The second will prove it one way way or another.The fact that it was inconclusive the first time is a positive sign in my opinion. As for my daughter, after loosing 1/3 of her tongue and undergoing a partial neck dissection to remove 28 lymph nodes
the second op revealed she was free of this awful disease. She still requires constant monitoring for 5 years and appreciate there is a long way to go.
You will come through this and will be stronger as a result. I'm sure everything will be OK for you and yours.
As one parent to another please feel free to contact me personaly so we can discuss the anxieties felt by parents of suffers.It really is a terrible ordeal for us.

Love and best wishes David.

david, i cannot imagine what you and your family are going through, its sounds like your poor daughter went through such an ordeal. i can only hope and pray that the results are good for my son but i feel so doubtful at mo and waiting another 9 days is driving us mad. i will keep you updated. i hope your daughter recovers well from this horrible disease and goes from strength to strength in the future.
take care x

Nicki, try to be positive, I know its difficult but hang on in there.
My daughter is doing well and getting on with her life. She has a speech impediment and some difficulty in eating but what the hell its a million miles from where we where only three weeks ago.
The changes in your anxiety will be dramatic once you've had the reasults of the second biopsy. The 10 day delay in getting the results of the pathology are the worst to bear. If the NHS can improve then its in this area. Waiting 10 days for lab results is unacceptable in my opinion.

Take care and love, David xx

Hi, Just to let you all know that we have been for my sons results today and it is not cancer..phew!!! they say it is a serious bone infection which will be difficult to treat but they will be reviewing him regulary with scans etc. i just would like to thank all of you who gave me support and advice and wish you all the best for the future . nicki x

Nicki, what wonderful news. Good luck to you and your son for the future. Sure he will overcome his current problem.

Regards, david.

Fabulous news, Nicki
Best wishes all round.
Cheers
Deborah

Wow thats brilliant

Hi Nicki,
Fantastic news. We've all been watching this site with fingers crossed. Everyone is so pleased for your. Good luck to you and your son.
Lots of Love
xx

Hi Nicki,

Thats obsolute fantastic news, but still made me cry! Best wishes for the future.

Love Sue x