Hi my name is Shelley and I was diagnosed with mouth cancer in February 2002. I am originally from South Africa and have been living in the UK since June 2002.

Hi Shelly

Welcome to the new message board. You're our first poster!

What sort of mouth cancer have you got? And how are you doing/coping?

I like your signature """Of all the things I have lost, I miss my mind the most!!!""" I would have thought that since you're from South Africa, you would be missing the weather!

Look forward to hearing more from you.

Best wishes

Vinod

I really miss the weather like u wont believe it!!!!!
Im seeing a maxillo-facial surgeon on my birthday(can u believe it) to hopefully re-build my gum cos the dued in south africa made a @@##$$%% up!!!

Hello Shelley
Make your birthday wish. I hope your new surgeon can help. Have a good birthday anyway.

Hi Shelley, I had Mouth & Neck Cancer had operation 15 months ago. Had 30 Radiotherapy treatments which was horendous and to top it all part of my tongue removed as it went black and my speech is badly affected.I am just getting away from it all at the moment just back from India and going to Tunsia on Sunday for a break. I am fed up of the whole thing. It is not the Cancer or the operation it is the after effects that is killing me . Paul

Hi Everyone

I.m Eileen and come from caerphilly
oh how I agree with both of you I was diagnosed with tongue cancer ( inthe minor salivary gland ) a tiny red mark that the dentist found did not even know it was there and how I wish I had left it like that the cure is worth than the cancer the lymph nodes were removed and they were clear I was reallly fit and healthy before this talk about depression Ive never suffered before with it
I.m reacked with anger that I had the surgery done no radio or chemo innfact there was very little evidence of a tumour there I so understand how oyu feel as I feel I would have gone on for 5 -10 years before anything nasty appreared to affect me it was low grade still thats enough of me I hope you all feel better and can find the positive outlook that I lack

Dear Eileen

Please see my reply posted under the Concerns topic in the Q&A section.

Best wishes

Vinod :coffee:

HI, Iam back from my hols and feeling alot better now the worst thing is my sppeech is affected and it is embarassing but hey who cares.
I am going back to work sooon I think that will help me .

Paul

Hello Paul

Looks like your holiday has done you a lot of good! How was it in Tunisia?

Work gives a sense of purpose and gives us a sense of self-worth. So, you should feel better if you enjoy your work.

Practise working on your speech - it does get better (not like before though). Read Mouth Tongue and Teeth - A Personal Account
- it is encouraging and amusing.

Best wishes

Vinod :coffee:

Hi Paul, You will eventually get used to your speech and it does improve as time goes by. Most of the ppl who don't know what I've been through just seem to assume that I had one to many :lol: (especially over the phone) but hey I can live with that

hey i just finished (6 weeks) 30 radiation treatments in houston.before that i had neck and lip dissection. the radiation was horrible...i had to put that burn tape on for 2 weeks. doing better now although still dont like to try to eat .also having swallowing pain, but am trying to get off medicine anyone have any ideas-------

Hello Kevin

You will find the patient stories helpful especially AK's and PH's stories of their experiences. There is also information on treatment on the website.

Best wishes

Vinod :coffee:

yeah thanks i have read all the stories..they help alot....i just need to learn to be patient...i always am in too much of hurry. i have followup blood work and cat scans 4.29 4.30 maybe then i will start to relax...oh yeah i am 44 yr old male 3 kids from louisiana usa

Hi Kevin, great to have you onboard. We have a saying from back home which is South Africa """vasbyt""" which means """Hang in there"""

hi everybods my first time here and this seems all a bit odd

Ive been in this particular club for a while now (mucoepidermoid and a warthins)

currently something is going on and they arent trying very hard to find out what! Royal Marsden previously ...brilliant hospital now Im in the north east b***dy useless lot. :banghead:

what sort of cockamamy hospital sends you for an urgent ct scan, then doesnt give you a follow up appt for 6 months!

ho hum

john