Hi everyone - I've really learned a lot from reading the information on othis board - I had a biopsy of my tongue on Oct. 12th, and I go back to the doctor's office on the 19th to find out the results - I don't smoke or drink or chew - I'm a 56 year old Memaw with 2 grandkids - I'm afraid I'll go blank in the doctor's office if he does say it's 'C' - I won't be able to think of anything to ask - so I'm researching now (keeping myself busy this way) and writing down possible questions and then just hand it to him - right now, based on hearing your experiences, I think I should be able to handle myself well, but when that time comes, I might not and I just want to be prepared - my mother had 'C' and I'm a carbon copy of her - looks, health, and all - if this turns out to be 'C', I want to document all of this as some of the others have on the board - you all have encouraged me so much and you've never even talked to me - I want to be able to encourage others too - I promise I'm not scared or worried - what will be will be - I just want to know what's going to happen next - hope that makes sense to everyone - I hope the best for all of you - thanks - Pam

Welcome Pam, I must say you sound so calm about all this, I tip my hat to you. I don't really think that anyone can PREPARE for this. If there is a way, I want to know it. For I am tired of being shocked beyond belief with this. And I have been dealing with this for over 15 years. Tell me your secret. PLEASE!!! What part of Texas are you from. I am originaly from Lawton Oklahoma. I will be thinking and praying for you. I know I always had questions wrote down for the Doctors. When they start talking they say so much that when you leave you are thinking what did he or she just say. It takes a couple of days to sink in, that is why I always had my husband with me. Because he could hear what I blocked out. Once you hear those words, or for me anyway, I heard nothing after that. I was in shock. You are more than welcome to ask anything, we are hear to help, to teach and hopfully inform others. This is a deadly disease and no one should go thru this alone or blind. I don't know all the answers, I still have a hundred questions myself, but I know with help from my friends on here, I will get close to a answer...God Bless You Always, Vicki Lynn

Thank you so much for replying Vicki Lynn - I have since downloaded 'Barbara's Book' I think it's called that helps you get organized from before the visit until afterwards. Right now I just wanted the 'List of questions for the doctor's. After Tuesday, I'll print the rest of the document

I live in a small rural area in North East Texas so I go to Dallas for my specialists - I guess that's where I would go if I needed to.

My biggest concern is being around by groundkids (7 & 3) and not being able to talk to them and with all the scars I'm hearing about - I'm wondering if I should cover and just try to right notes to them for a while - and who on earth do you tell first after you husband that is?

I don't get to check the board very often but I will for sure next Tuesday night after I find out the results of the biopsy. Thanks for being there.

Pam

:alert: PLEASE Pam dont look into what might be wrong too much and the treatnent.
I did this and I am sure it was fate everything that could go wrong did :banghead:
I willl pray for you this am at Masss and hopefully like many others it will be nothing.

I have many times sat in my Consultants waiting area watching people and you know why they are there by the look and actions and every time I see one come out with a smile on their faces I thank god anoither one saved from this dreadful illness.


I will await your results

Paul

Paul you are a doll and so so RIGHT, Listen to him Pam,,,,Always Vicki Lynn

Hi Pam,

Just wanted to send you a big huggggg and much luck for your appointment today, am thinking of you and keeping everything crossed for you, including my eyes..

Michelle x

Oh thank you sooo much Michelle - I have 8 hours to go - I thought I was going to make it just fine but when I woke up this morning that was the first thing I thought of and it hasn't changed since - this is going to be a long day - thanks so much for the hugs - I promise I will return this evening and let everyone know the outcome - we have to buy groceries tonight after the appointment no matter what the outcome - if it is 'C', I'm going to buy all the ice cream and other 'stuff' I've always avoided and really pig out - I guess that's nerves afterall - I'm wishing all of you the best - I hope I don't 'need' to join your family but if I do, I don't think I could find a better family to be with - Love you all - Pam

Pam how did things go??, hope your not around cos you out celebrating.

huggs

Michelle

Hi Michelle - thanks for replying - I guess I should have followed up on this thread - I had placed a response on the 'question' thread I think - the Dr. told me it wasn't malignant but explained that cancer doesn't just develop overnight - he said the cells had changed(?) but were not cancer yet - and that didn't mean it would ever be cancer - but he set me up to see an oral surgeon on Thursday of this week - I'm going to have him search my mouth thoroughly for 2 reasons - one, under my left ear and left side of my neck is really hurting and I think the inflammation from the tongue problem may be in my glands or whatever they're called when you get an infection - the second reason, just this past week, I found out that an acquaintance just found out her tongue biopsy came back cancer - she goes tomorrow to found out what treatment she needs - I gave her the website URL of this board and told her how informative it was for me and how nice everyone is and she's suppose to be researching it this weekend - her oral surgeon found 2 additional spots on her tongue - so out of 3, 1 was cancer and 2 were precancer - I've been trying to do some research for her too - my doctor wants me to come back monthly for a while to keep a check on my tongue so I guess I'm being watched pretty good - thanks again for asking - Pam

Hi Pam

Sorry i missed your update on the other section, lordy knows how as i seem to be here reading most of the spare time i get. I am glad the news was kinda good for you, am sure everything will be fine and docs keep a watchful eye over you, to your friend i send much hugs, and hoping for her to get things sorted out and least she has found this early, which should hopefulyl make things a tad easier for her..

huggs

Michelle

Hi again - just a note after seeing the oral surgeon today - he agrees it's not cancer - wouldn't say it would never become cancer - but he did feel it was more in line with my autoimmune problems - he seems to think lupus - I guess based on some of the thinks I told him about my medical history - so - I guess I'm ok for now - I'll still be coming by to help my friend search for answers in her situation - keep her in your prayers - thanks - Pam

way to go Pam huggggssss i am so happy its turned out ok for you, and am sure you will be ok for long time to come..

Michellexx