Six years ago I had cancer in my tongue and right tonsil.
Had a radial fore-arm flap job and then radiotherapy.
I'm ok now but still can't eat.
I do liquidise curries(need to be spicy to taste)and other high flavoured foods but needs to be very thin, I literally pour this down my throat.
But it works.
I have Fortsips and other similar 'foods' to keep my calories up.
I still use my peg now and again if I'm not at home.
'Eating' for me is a messey affair and can only be done at home.

I'm 47, 48 next week and single(was married).

Anyhow that's a quick bit about me.

This message has been edited. Last edited by: Dave Tipping,

It's an interesting site Dave - better late than never tho!

You are going to have to explain your hyperbaric treatment to us all!
Unfortunately my mouth is far too sensitive for all but the mildest of curries and spicy foods - which is a shame as I enjoy them so much! People in eateries must think I am a wimp when I ask how hot/spicy the food is as I tell them it has to be mild.

cheers Tony K

cheers

Hi Tony.
Did you have you op at the Royal or Glenfield?
I was at the royal in the Kinmonth unit.

Hyperbaric was over at Peterborough.

It was treatment I needed to speed up recovery after having all my back teeth removed due to damage from radiotherapy.


Remind me at a more sociable hour and I'll tell you all about it.

It's a real pleasure to be able to go out and eat a curry with friends again, but I also have to go for a mild and creamy one. I have recently tried a kashmiri, and found this to be quite acceptable.

Like most of you I usually go for a Korma or something similar (very mild). However, the other week I got a little too adventerous and sampled a Tikka Masala which isn't that hot to the average diner.....but it nearly crucified me. A stark reminder not to try to eat the stuff I did Pre-Rad days.

Strange you all need to go for the mild stuff.
Mind you in my early days I think I was on mild tame stuff if anything.

I have extra chilli in my curries and extra chocolate in my drinks these days.

Tip, 250g bar of Cadburys Caramel, one tin of evapourated milk and about 1/4 pint full fat milk.
Micro blast for 4 minutes and liquidise.
Mmmmm very nice.

It's a shame I have to drink it in one hit.

Dave,
I think the taste buds go through stages of healing. About 6 months after my treatment I was eating really strong curries (the ready meal sort) as my tastebuds had only recovered a little, and I could only taste strong foods. Now my tastebuds have recovered some more and I seem to have the tastebuds of an 18 year old - I can only eat mild foods, and I can now drink cider (with lots of ice) and sweet fizzy wine.
The drink sounds fantastic, but as I am now eating really well I don't think I'll try it. I can't afford the extra calories any longer.

hi dave sorry to hear about you..im new and could you please tell me what a peg is

thanx jeff

quote:

Originally posted by Dave Tipping:
Six years ago I had cancer in my tongue and right tonsil.
Had a radial fore-arm flap job and then radiotherapy.
I'm ok now but still can't eat.
I do liquidise curries(need to be spicy to taste)and other high flavoured foods but needs to be very thin, I literally pour this down my throat.
But it works.
I have Fortsips and other similar 'foods' to keep my calories up.
I still use my peg now and again if I'm not at home.
'Eating' for me is a messey affair and can only be done at home.

I'm 47, 48 next week and single(was married).

Anyhow that's a quick bit about me.

This is my first one but I have another fitted now.

It's for feeding through.
Milkshake type foods.

They can be fitted up the nose and down the throat which are normally a temp job or like mine that's more permernant.

Mmm no comment on my nice slim, toned healthy looking torso then?

Mine used to look just like that! The PEG that is - not the torso.

I was in Kinmonth for 4 nights following my neck dissection- I was well looked after but I really couldn't stand it in there. Not good for my mental health - it was too noisy and claustrophobic. It was mostly down to my mental state tho'. Once my drains had finished draining - I was out of there!
Mr. Moir and Mr. Varghela were the superb surgeons. I still see Mr. Moir for follow ups.
Mr./Dr.? Vasanthan was my RT consutant.

Best wishes to you - Tony K

I was there for 10 days.
5 in the ITU side and 5 in a nice side room with windows.

Mr Alan Jones was my man but have seen Mr Moir a few times.

Can't remember the plastics fellas name though.

Vas is my radio therapy chappy, nice bloke doesn't seem to have a care in the world.
I'm still seeing him every 12 months as I was a tester for a new drug they were trying out.

I still have my dietician visit me every four months.
She frowned at me the other day for losing half a stone.
Dunno how I managed it on my diet though.

I must be the only cancer patient to put on excessive weight. I have become more sedentary/lazy since the cancer! I had a high fat diet(loads of cream on everything) when I was ill.I was told not to lose weight if possible and even though I had a much reduced appetite the high calorific stuff kept my weight steady.
I only had one really bad week when I could barely eat or drink anything- they put a peg in then.

I've met Mr Alan Jones - a nice guy. He told me my depression was due to my being frightened to death of my condition - to damn right!!
Your surgery was a lot more invasive and complex than mine. I'd be interested to know what drug they tested on you and for what purpose.

thanks - Tony K

I can't remember the drug right now but it was to promote the white blood cells during my r/t.

I had to inject myself in the belly every 3 days while I was having the r/t.

Some of us were on placebos(sp) and some on the real thing.
After the tests I was told I had the real drug.
Not sure of the final results as I think it's still undergoing testing.

If ever you are feeling down in the dupms and depressed give me a shout via pm system and I'll see if I can cheer you up.

Cheers.
Dave.