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The Mouth Cancer Foundation Online Support Group Mouth Cancer Forums Members Forums Introduce Yourself just been diagnosed with cancer of the tongue|
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hi all
well last monday i was told that the biopsy i had had on my neck nodes showed cancer.i was in total shock as celine dion once said in an interview, cancer is never part of your vocabulary.last june i had a gastric bypass to lose weight as i had tried all sorts of diets over the years to no avail and i was almost 25st and also suffering from severe sleep apnoea.in july approx a month after my bypass i noticed that i could feel something in my throat.my g.p said i cant see anything wrong except that your nodes are swollen in your neck.i kept getting urinary tract infections and i guess i put it down to having an infection in my bladder,mainly because everytime i had an infection the nodes in my neck became huge.well late dec i went to my g.p and said that the lumps in my neck were still enlarged so he referred me to a ear nose and throat surgeon.she looked down my throat with a camera and took a biopsy from the largest node in my neck.i tell you folks i really thought that i was making a fuss out of nothing.so it was a total shock when i went back a week later to be told i had cancer and it was likely to be a the base of my tongue as she has noticed a swelling there when she looked at my throat the week before.i have had a ct scan and she did a biopsy under a general anaesethic.after she said that the ct scan looked very positive and that the tumour looked to be superfiscial,this week i have an appt for a bone scan on wedneday and an mri scan on thursday.on 2nd feb i have an appt to meet the whole team of maxifacial surgeons and oncologists to discuss my case and decide on the best form of tratment.i dont need to tell you how i am feeling because you have all been there  i am so glad that i found this site as there are so many sucess stories that it had made me feel a bit more reassued for the future.incidently my name is shirley i am 53 years old a mother to 4 children and grandmother to 4 grandchildren and married to my soul mate.many thanks for hearing me out.have a lovely day all.love shirl xxx |
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Shirley,
The first consultation will be a multi-disciplinary hearing, so that everybody can discuss your case, and the best way to treat you. Is this going to be at QA? They have an excellent reputation in the treatment of cancer, so you are really lucky to live where you do. You will recieve excellent care from the team, and the macmillan nurses are very supportive, and will discuss all your emotional, financial, and physical issues with you. I'm sure that you will be in total shock at the moment, but do try not to spend too much time researching on the internet, as it only seems to document the worst cases, and you can really scare yourself. The treatment is tough, but the end result is worth it. I was diagnosed with cancer of the tonsil in October 2005, and after a just over a year on extended sick leave I'm going back to work on Monday and I'm really excited about restarting my life. You are lucky to have a caring partner, and hopefully your large family will be supportive over the coming months. I wish you all the best, and do keep in touch with everybody here. It really helps to be able to talk to people who understand what you are going through. If you suffer from side effects from the treatment then someone always seems to have had similar problems and can offer advice on the correct prompts to give to your medical team to get the best relief. |
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Hi Shirl,
I would just like to re-iterate what Jenni has said about the support on this site. My husband Robert is just getting over the effects of treatment for base of tongue cancer and the support of people on this site has been invaluable (Jenni being one of them). Just to know that there are people who understand totally what you are going through is a huge benefit. During the past couple of months we have come across people in the medical profession who haven't been able to offer advice as good as the people on this site. Every cancer and all treatments are different but the people here really do know what you're going through. I think it's important to stay positive and remember that just because you've been diagnosed with cancer doesn't mean that it's a death sentence. The treatment of cancer has come a long way and you're right, the survivor stories on this site are really reassuring. What some people here have been through just amazes me and I feel really privileged to be in touch with you all. I'll look forward to reading your updates Shirl to see how you're getting on. |
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thank you so much for your replies,and your support,i know that this site is going to be so invaluable to me,i am so glad that i found you folks.love from shirl xxx
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Hi Shirley, I think we all can understand the shock and fear you are going through. Remember we have all been there so don't keep it all inside let it out. The people will understand how you feel just tell them and someone will always be there with advice or just to listen. My cancer primary was at the base of my tongue so maybe if you read me blog you may get some idea of the tumoil I went through. But just remember you can come out the other end and find it has made you a better person also in my case changed my life for the better. If you need any advice about how to cope with side effects etc ask we will help all we can.
Keep us informed how you are doing and remember we are always there to listen.  |
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Good Evening Shirley,
May I add my twopennyworth? I too am a mouth cancer patient and as Maurice so rightly says we all know just how you feel.I won't pretend that you are in for a fun packed few weeks but it is not as bad as you are probably thinking right now. A lot of questions will creep in to your mind so don't be afraid of asking, someone will have an answer for you. I did't find this web site until six months after the major op. I am sure it would have helped me a great deal if I had known about it earlier. Please keep us posted, Shirley, You have already made friends on the site ,more than you know about and we are all ready to help if we can. Keep Smiling  John |
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thanks very much,yes you are right about worrying about everything,i feel like screaming STOP THE RIDE I WANT TO GET OFF!!!i just wish that i could switch my mind off and it all seems worse in the small hours of the morning.so many questions like will i be able to talk again etc etc and so it goes on,you all feel like good new friends i have met on here and i thank you for that
i am going to be reading as many blogs as i can.bless you all.love shirl xxx |
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hi shirley
i know how you feel...i see my consultant for diagnosis 2morrow....i have had a lot of support on here and im sure you will to....i agree the small hours are the worst i have managed to try and forget it by doing everthing i usually do and joining in as usual.....but its been dam hard  but the way im looking at it now is that there are many peeps much worse off than me.......and they cope with it... i love people and taught kids with learning difficulties and disabilities (im signed off now)so i really can relate to it. it must be devestating to hear the news and i will probably crumble 2morrow but at the mo i feel i will get on with it. i hope its true after 2morrow......and as you say...you have made good new friends here and we all look after each othertake care and try to think positive  jeff |
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Shirley,
If you are finding it difficult to sleep and want some help with that your GP will be understanding, and prescribe some sleeping tablets to use in the short term. Be reassured that now that you have been diagnosed you are in the system, and the whole of the NHS is working hard to try and cure you. Things may start to move very quickly as cancer patients are given a very high priority. |
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Hello Shirley
Not to be left out, I too lend you my support. If I can advise you based on my own experiences I will. I believe that you will get an incredible amount of support from your family and your now new found friends on this forum. Luckily, it seems, that there are posters from all over the globe, so an answer to a question is usually never that long after being posted. Good luck - Pete |
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Hi there Shirley, Well its all been said but were here to support you.
I am in remmission 5 years with Mouth & Nack Cancer unfortunatly I have a Ultra sound and biopsy later today for lumps in my neck and waiting for a PET Scan for fleshy skin at the base of my tougue,although have had many scares am still very scared and my mind working overtime is it or not what will I do? what can be done? it goes on and on. I will pray for your at Mass today I cannot really say more than been said. I would say ANYTHING your worried about however small take a chance at posting on RDOC and you will find many people to support you and give you their ways of coping strategies .I just try to block it out until the time comes to worry easier said than done  Paul |
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Jeff, thinking of you today- be strong! It will be a difficult day whether you have good or bad news. All I can say is we are all here for you and know just how you feel.
PLease keep smiling! ANNE |
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What more can be said, we are all here to help and support you were we can, we all have different experiences and reactions to the treatment so do not scare yourself by surfing the net and reading stories as everyone is different.
I had an operation for tongue cancer followed by Radiotherapy, I came though all of this very well and have nothing which effects my quality of life to any great extent, in fact I now have a better quality of life than I did before I had cancer. It is a long and sometimes difficult journey but you will see from the posts you do get to the end of it. You seem to have a very positive attitude so you are already 1/2 way to winning the battle. John |
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The Mouth Cancer Foundation Online Support Group Mouth Cancer Forums Members Forums Introduce Yourself just been diagnosed with cancer of the tongue