Hi im tracy im thirty nine and at this moment in time my boyfriend is in hospital recovering from mouth cancer operation which he had last Tuesday.

Hi! Tracy,
Welcome to the "C" Club we here at the forum are always here to help with explanations, hints & anything thing that will ease your load. Our resident Dr. can also guide you with expert advice and Links for aditional services. It will be a difficult time for a while but be assured all of us have been through it or are currently going through it and we all understand what you and your boyfriend are going through.
Love TREV
" Stay Strong "

Thank you,

Tracey has PM 'd me a few times today and is in great need of help and support from anyone here who has had a total or even partial glosectomy.

Come on guys lets see what we can do to help her.

love liz

Hi Tracy
So sorry to have to welcome you to this club, but as others have said, you'll find many friends always ready to talk, listen, advise, or send you a hug (Ananth). My father had surgery for tongue cancer on 26th November, and since his diagnosis in October I have been through every emotion known to man, and some I didn't know existed! I have sent you a private message with my contact details if you want soeone to talk to. Wishing you all the very best.
Sara

Hi Tracy,
Though I am not too happy under the circumstances that has brought you to the forum - but welcome all the same. As Sara mentioned you will find a lot of friends and improving slightly - they will all take you to feelings you have never known you had.

As Sara also mentioned whenever you want and nice arm hug - just think of me. I have become some kind of an expert at this and I have also developed this foot in the mouth illness. Please do not ever get bugged if my foot inthe mouth illness ever comes to the forefront as I promise it is never with any ill intention or rancour.

Do let us know a little more about what happened and what is the treatment. Though none of us are doctors - I think a lot of people here have become more qualified then specialists. You will find tips on how to make your boy friend more comfortable and he will as you get a lot of support from everyone here.

So take care, lots of love, xxxx(I dont worry about husbands and jealous boyfriends when sending out my kisses) and lots of really warm bear hugs,
Ananth

Tracy,

Hang in there.... The hospital recovery time can be scary, especially soon after surgery.

In case these words of encouragement are helpful to you:

Just keep hanging in there, and have hope. (Believe that you and he will get through this, somehow.) Call up a good friend, who listens well, and cry as needed. That can help, in addition to learning all you can about the details of your boyfriend's treatment and recovery options. I found that not hesitating to ask questions and taking notes was a great help in dealing with the experience.

My husband had a semi-hemiglossectomy last September at the base of his tongue. The first day was pretty awful, when he had some trumpet-looking bloody thing coming out of his nose from a tube that was keeping his airway open. Necessary, of course, but awful looking.

I'm glad you connected with this forum -- it's important to reach out for help during this time.

Susan

Hi Tracy
My mum had a large part of her tongue removed last April and I'm certain I've been through the whole range of emotions too.

I'm in West Yorkshire - if I can help, I will.

xxx

Hi, Tracy!

You PM'd me earlier this week and I haven't responded because I too am new and don't have many answers yet; in fact, I'm not even sure what questions to ask.

I received a book this week, "We've Walked in Your Shoes," from Support for People with Oral and Head and Neck Cancer (SPOHNC). The book is free upon request, one per customer, to US addresses only. The book is very informative, easy to read and understand, and has some beautiful illustrations. I learned a lot and would like to pass it on to you.

If you could send me your name and address (in a private message) I'll send it to you. If you prefer anonymity, I can send it to your work place in care of someone else, or to whomever would be able to get it to you.

I was the caregiver for my Mom before she passed away with breast cancer and now my daughter will be my caregiver if and when I need her; am sure I will. You have no idea how I hate having to pass this burden to her and I'm pretty sure your boyfriend feels the same. I think the caregiver's job is extraordinarily difficult and so often under-appreciated. As nasty as this is and as bad as my earlier bout with breast cancer was, the emotions are nothing like those I had caring for my Mom. I have never cried for myself but frequently cried for my Mom.


Tracy, I wish you and your boyfriend well. Remember to take care of yourself!

Mimi

Hi Tracy,
I want to welcome you and send my regards to you and your boyfriend. I hope I can help you out with any questions you might have about tongue surgery. I am 36 years old and had a partial glossectomy in August of '07, and am still recovering from the surgery and subsequent cancer treatment. You will get very helpful advice from the members here, especially when times are tough. Feel free to contact me.
All the best,
Pamela

Thank you to all the people that have sent me messages.I am not very good on computers and i have only just found your lovely messages.HOPE TO HEAR FROM YOU ALL SOON Tracy.

Hi Tracey

Another post to welcome you to this site. People here are lovely and friendly and you will get lots of support to help you over the next few weeks. I had an operation for tongue cancer in October but mine turned out to be a relatively small op in the end. Thinking of you both. Please let us know how things are going.

Love
Gwyn

Hi everyone my boyfriend is out of hospital now.He ended up only having to have one tooth out but he had lymph nodes took out of his neck as well.He has got to go back for his results for this on Monday.He dident need any cutting off his tongue.He has still got a plaster over the hole of his Traceotmy Tube but the District Nurse who came today said this should have healed by Friday.

Hi! Tracey
Great news girl it won't be long and you will look back at this time and think "what was all the fuss about?". all the best to your boyfriend and off course yourself.
Love TREV

Thanks for your good wishes Trev.At the moment my boyfriend has very little use in his right arm because a bone has been taken out of it for his jaw does anyone know roughly how long it will take to get back to normal he is doing exercises for it.Also does anyone know how long it takes for a Traceotmy Hole to heal up.Tracy.