HI


I find google a very useful site just punch in the tpe of cancer diagnosed and away u go

Thanks Eileen

http://www.cancerresearchuk.org/

This is also a pretty good site

Hi Shelley


Nice of u to put the web site up HaVE U read the article on cancer on MSN website which refers to the fact its nonsense to talk about ealr catching of cancer as it has developed a long time before its noticed/ The interesting part was in a styudy of people with oral cancer of 78 men left untreated they survived from three months to 75 months thats over 6 years if that was true I dont say people of your age group but my age group im sure would prefer to go down that road ass the surgery is ghastly for mouth cancer. let me know your thoughts. it said in effect dont check out your cancer until it bothers you I wonmder what our good doctor has to say about this Eileen

. it said in effect dont check out your cancer until it bothers you I wonmder what our good doctor has to say about this Eileen


Hi Eileen, No I haven't read that article but I'm shocked at the implication that you shouldn't treat it unless it bothers you, by that time it would be far too late . I do believe though that everyone has cancer cells present in their bodies and anything could trigger it off.

Hi
I belive that too Shelley,i mean my grandad never smoked,drunk or anything.He was a health freak,yet he got lung cancer,and he died within 3 months of being diagnosed.
I must admot he left it too late to go have it checked out,but then again no-one suspected it to be cancer.

Following has some interesting stuff, remembering that it's an American site.


www.oralcancerfoundation.org

Dorry, but I don't know how to insert a hyperlink onto this message

Magic the site does it for me

Hi
What do think of the story by some experts that people live up to 4 times longer without cancer treatment unlessits a matter of life and death they say the patients are stronger and better placed to live whatever life they hjave got and ay cancer is not a dangerous cancer until it becomes invasive by which time its b going to get u whatever u do

Well Eileen, I can't really agree totally with that 4 times supposition.

I think the problem with cancer (and probably with with many other diseases) lies with the type of cancer, and more importantly with the individuals reaction to the disease.

I'm sure that when we're first diagnosed all of us are really, really frightened. At the time some of us may not even feel as though we're ill.

Then, we're advised about treatment is considered best,together with any available alternatives.

Now I'm sure that forsome people with specific
cancers these alternative methods of treatment work. Having said that, and having read one or two people's experiences their true quality of life doesn't really sound much better than some who've taken the conventional path. Strict, and I mean really strict, adherence to a dietary regime is only part of the story.

Personally, I have absolutely no regrets about taking the route of surgery and radiotherapy. The team treating me gave me worst case scenarios, and things turned out better than I expected.

However, how I would feel if I was in Paul's situation (cancer return) I don't know, nor would I like to speculate. I hope that I would be thankful that Iwas given an extra 6 months (so far) of life.

I'm 99.99% sure that had I tried alternative methods of treatment I would not be here today.

Bottom line, cancer's a very personal thing - have you noticed how people talk about """my cancer"""? Choice of treatment is down to each patient and I don't think we can expect the teams looking after us to offer what I think of as alternative treatment. Why not? Well they're not trained in those particulat disciplines. They can only offer us what they know based on their experience.

I look forward to your proving met totally wrong.

Shelly

Not sure what you found helpful about the Cancer Research UK Website! I work for CRUK and I'm just about to do a presentation on oral Cacer for the area managers. I couldn't find anything helpful on there, that's why I'm in here looking

If anyone has any suggestions of things I should include in the presentation then I'm open to offers I'm going to do a short quiz (maybe 10 questions) to raise some issues and also give some stats and info. Any unusual or little know ones woul dbe appreciated!

Dear Lian

I wrote to Cancer Research UK in October 2002 offering them a direct link from the RDOC homepage to online PDF version of their then to-be-published Mouth Cancer Awareness Leaflet leaflet so that our visitors can access it to print out. In return, I asked if their new mouth cancer leaflet could mention the RDOC Oral Cancer web site as the UK Oral Cancer online resource and looked forward to working together .

I was told that: """Unfortunately, it is a policy at Cancer Research UK to only include links on our leaflets that go directly to an information source, rather than a site linking to information""" .

I have no such policy, and so will do anything that helps and benefits the patients. I gave the link on the RDOC Homepage anyway . The website currently receives over 12,000 visits each month. These visitors come from over 9,000 unique sites each month. It is the No 1 site returned by the Google search engine for the words: �mouth cancer�, �oral cancer UK�, �throat cancer UK� and �head and neck cancer UK�. It is No 2 for the words: �oral cancer�.

Perhaps you could get this bureaucratic charity """Cancer Research UK""" to change their mind ?

Best wishes

Vinod :coffee: :

You want to try working for them! :banghead:

They have become really hard work since the merger - I think they have lost their direction... they seem to have forgotten that the main reason for the charity is to raise money to undertake research to 'help cure cancer faster'. I remember when the oral cancer leaflet came out - it looks identical to all the other cancer leaflets. Basically, all it says it don't smoke, don't drink and eat veg. People already know this message. You won't find many shops with the leaflets out anyway - they are under too much pressure to use the space for other things.

I heard a rumor that said they were so far behind budget that one of the researchers couldn't begin his work because of a lack of cash.

The charity pays my wages, but it doesn't mean I have to agree whith what goes on in it's retail section... and I don't. Oh, and please don't think they are very sympathetic when it comes to taking time off to go to the hospital.