hi everyone

cant believe how time is flying. i have have only got 5 more RT,s left. i have to say though that i feel awful!! im so whacked out most of the time now,my scar is red and sore,my tongue tingles and my mouth is as dry as the sahara!! and to top it all my hair as started falling out at the exit site. i just keep telling myself its all worth it and i wont feel like this forever. i think iv got just about every side affect except weight loss and i bloody well wanted that one!lol. my nights are quite dificult because im waking often and im almost choking, i think its because of some swelling and dryness. all the hospital staff have been so good, i have got medication as soon as i had a prob, i have had advice and support and they let me twitter and moan and still keep a smile on their faces and im sure they must have heard it all a million times!! i really cant fault them. anyway thats my moan for now!!! stay well everyone and hang on in there!

love christine xx

Christine well done, My husband Graham is 14 days into 30. He is finding nights especially hard as well, he mouths breaths so that obviously makes things drier. Have you found anything that helps, he sips water through the night and has pain killers, only paracetomol. I think it might be time for something stronger?

hi muse

i take my spray to bed with me now along with water and the hospital have just given me some lozenges to moisten my mouth which i take in bed just before settling down. i have got extra pillows and try to sleep more upright.im also taking diclofenac. At the hospital today they have prescribed me a nebuliser so im going to give that a try too.all these help although i do still wake. i would agree that graham should ask for stronger meds. hope this helps

love christine x

Hi Christine, 5 left, not a too far sight to aim got. Myself I have another 8 to go. I agree, its tough treatment, but apparently for the best.

Soreness is difficult and I can only half imagine the pain you are having if we are similar. Have you got a decent stereo or even a walkman, I find this helps, if not brings on the off feeling of intense emotion.

I never found the NEB any use. I think the mucus I produce was seen in Aliens, and this gadget ain't gonna dent this problem. So a dry mouth, how is your breathing through your nose. Easy to say being a dive instructor but breathing control has been my most beneficial aid in this saga.

When I reached 14 days and treatments like Graham, it was on to the cocotamol, then a few days later the morphine.

You will get there soon for sure. Then its time to have a look at the menu, I can't stop thinking of oven cooked cumberland sausage, mash, gravy with onions and maybe an Aunt Bessie Yorkshire. Maybe I write to Ensure makers next, gets dull apticot and raspberry.

My generation, The who.,
Love Nigel

Hi Christine, at least you've nearly finished and you are right, it is worth it and you wont feel like this forever. Hang in there. Hagg.

hiya
not surprised you are tired the more rt you have the worse it gets,i got to 12 and then got all the symptoms of tiredness etc.listen to your body go to bed if you feel like it.dont suffer in silence.some people on here have managed to work while having chemo and rt my hat is off to them.not long now and it will all be a distant memory love shirl xxx

thank you so much for your support everyone.it helps to hear from you all because i know you all know exactly how i feel. i was getting a bit cocky and thinking my side affects woudnt be too bad!! boy was i wrong. i have been going to bed in the afternoon for last few days which im not happy about coz i feel like im wasting my day but i just cant do anything else. my mouth is bone dry no matter what i take or do. i dont normally have a prob nigel, nose breathing and when i go to sleep im ok then i must start mouth breathing and get even dryer and almost choke.dont know if i can do anything about that. how people carry on working thro this beats me shirl!! your right hagg im nearly done and when i am and back to normal im going to party like im a teenager!!! what id give for a night out with the girls. my best friend is just texting me now, i was supposed to go to france with her and hubby,s today but the RT got in the way!!! not to worry there will be other hols!!

love to you all

christine xx

Big hugs Christine - hang in there girl - its nearly over!

LOL I hd some silly idea about going to work for the mornings and having rt in the afternoons - well that never happened.

I hope you are watching Big Brother - I am sure all the arguing on that will take your mind off things (ooooooo that Becky needs a goods slap).

Nearly there hun.

Love Chloex

Take care
Dave and Sue

Chloe,
Funny that, i did the same but it never happened either! Good intentions though right?!

Christine,
you're attitude is just perfect for the horrible time you're going through. & just hold on to the fact that it will get better.
We can all empathise with how awful your feeling.
Keep up the good work!
Michelle

thanks for all the support everyone. i havent been watching big brother chloe but i have become a day time tv addict!!! i was all the crap and get right into it!!! and guess what else i watch? shaun the sheep!!! its kids stuff and i love it!! i was laughing out loud at it the other day!! oh my god i need to get back to work!!!

love christine xx

Ahhhh homes under the hammer - to buy or not to buy (this will mean nothing to our friends outside the UK)LOVE IT! But I draw th line a jeremy kyle!

I agree with you Christine - you need to go back to work if you are watching kids tv!
Did anyone else find it hard to read during rt treatment - I really couldn't concentrate!

Love Chloex

lol!!! i cant stand jeremy kyle!!! yea thats very odd about reading chloe, i cant either, even magazines that are easy to read i find im just skimming over. but i can follow the plot with shaun the sheep!!!help!!! lol my treatment doesnt finished till friday now, was supposed to be thur but i didnt get it today, the machine went on the blink!! saw the doc tho and she is pleased with how things are going. said my dry mouth could take up to 6 mont to get back to normal because i have very little salivary gland left but said it def would. i never realised how horrible a dry mouth could be. in fact i never realised how dry a mouth could get!!! not to worry nearly done now. hope all is still going well for you at home chloe and that you are still picking up.

love to you all

love christine xx

Graham has a pile of books waiting to be read, no chance. He is sooo not a TV person, but he is watching so much more than ever before. Maybe it's a can't concentrate on anything of real interest type thing.

I find it so difficult to watch someone I care about so much go through this hell. Mostly I feel I want to take some of it from him, all I can do is be his voice, here and with medical people as he is struggling with his voice right now. Even his diabetic medicine has to be liquid (expensive) as he can't swallow any tablets whatever their size.