Hi all,

I want to heat from people that have had pronblems with their lingul tonsils. Mine have been swollen now for about 9 months, my ENT Consultant says they are the largest he has ever seen, at one point i was ammiteed as thye were blocking my airways. I am 29 year old and starting getting sore throts about 9 months ago, i became lethargic, was having night sweats and day sweats, icthing alot, my voice starting changing and sometime disaperring, i was tied and felt sick, kept getting headaches, i have had blood test and all they can say if that my white cells are raised but not enough to suggest anything, i also have had a biopsy which came back inconclusive, its now 9 months on and after a few weeks of feeling ok and then feeling bad and then feeeling ok and thn feeling bad .......so on a nd so forth, i wna t to try and work out whats wrong, please can you let me know if you have had something the same thanks?

Hi Kelly-Marie

Good new is you had a biopsy and it look clear nothing found.

No swollen nodes on the neck?

A lot of your symptons could be from 9 months of worry.

All in all, whatever has enlarged your tonsils needs to be sorted out.

9 months is a long time can only suggest that you go back to your GP and bend his or her ear ask for a second opinion or the best way forward.

If Dr's don't come up with an answer keep on them until they do.

I hope I have not worried you to much.

Regards


Tony

Kelly-Marie,

If you are still having problems keep going back to your doctor. If you don't go back he will think that you are OK. If the doctor can't fingd the problem he will refer you to an ENT Specialist.

hi i have been back quite a few times, i have a ent specialst(who does not know what is going on) which i am planning to see again, as the last few days it has got much worst again. my voice is very horse and i am can barley talk by tea time, Been to the docs this morning and my lymph nodes are up again, but no temp, and she noticed that i have lost weight (which i havent been trying to do) sice i last saw her about one month ago, she has given my antibotics and some painkillers to see if that helps, but sh thinks its just a case of managing with it! which isnt much help as it is totally wreacking my life, any idea????

Hi Kelly- Marie

What did your ENT doctor diagnose?

Are your lymph nodes swollen all the time or do they go up and down?

Was a biopsy taken from the lymph nodes?

I am not a doctor but I have had tonsil cancer, some of things that you mentioned I had, but other I did not.

If your tonsil & lymph’s are swollen you could have a whole range of different things apart from cancer, they are apart of the bodies defence system, when I was a kid I had glandular fever (they call it a different name now), it was similar to the symptoms when I was diagnosed with T C.

Having said the above it pays to be sure 100%, if you are worried then go back to your GP and tell them that you need a second opinion from a different consultant, don’t take no for an answer and tell your GP how worried you are.

If your GP is not being helpful say you will pay for new consultant (from experience the mention of paying seems to bring a faster service) and it will bring you peace of mind.

Main thing is do not stop unil you are diagnosed correctly.

I hope the above is helpful


Regards


Tony