Today i had my interview with the research people at St james Hospital,and the good news is that they are going to launch a mentoring scheme for Oral cancer patients,that will see them through all the phases of their treatment and also the post TX period.The best news was that they are considering the possibility of producing a document telling new patients about available help on the internet,specifically OCF,and MCF.They seemed very impressed with the information i gave them about the sites and the fact that at times they were my only support,so i feel very positive about the outcome of this project.
I have no doubt that if this comes about,that every one will get behind this scheme 100%,and extend a helping hand to all new members who find their way to us through this scheme.

Liz

Hello Liz

That will be very helpful for patients. The problem with mentoring is finding the mentors as head and neck cancers are more debilitating than other cancers. An online support group means support doesn't depend on an individual but a group who can be thee all the time as the load gets shared with helping according to ability to help (which varies from day to day).

Best wishes
Vinod

Hi Cookey ,well done you ,that is great news indeed .I wish we had someone around when Paul started ,it was not until much later when Paul was not recovering well from treatment I happened to stumble accross MCF in desperation looking for some extra help,tips and explanations.

Let us know how you get on .

Best wishes,

Paul and Bell .

Well done Coookey,

I totally agree will Bell. I am so cross with myself for not having investigated this site thoroughly when I first stumbled upon it. In retrospect we didn't ask so many of the questions we should have asked about threatment when my partner was first diagnosed. The diagnosis process was so long and full of cockups and delays that I think I had exhausted myself trying to get scans etc before we got to talking about treatment.

This website provides a fabulous resource for 'beginners'.

Hi Liz, nicely done. I wish the site had been here when I was diagnosed. Hagg.

Well done Liz for getting this off the ground. I asked about support groups after I was diagnosed and was told there weren't any. I got all the best information via this site.



Chris

Hi Liz, sounds cool, and a worthy cause, nice job. I just read a book for review, 100 questions and answers about head and neck cancer by Elise Carper, NP, Kenneth Hu, MD, Elena Kuzin, NP. I recommend it as a good all round easy read. Sure there is a lot more info contained on the MCF website, but to a new comer I think this can be quite daunting, Keep us posted

Nigel

I din't find the site untill just after my treatment and wish I had found it before so great news Liz.

Love Chloex