Dear Deb and Trev,

Thanks so much for the update(s). Although no one wants to hear that mighty Trev is going through tough times we would rather know the bad than not know anything at all. We can all understand how it is not easy to post during those times. I have not posted much lately but I do read this thread at least every other day. I don't read many others but this is the ONE. To share a bit of good news with the other side of the world - I BECAME AN AUNT TODAY!!! Two twin boys - healthy - both of them OVER 7lbs!!! Mom and Dad and rest of family are THRILLED!! I hope this brings a little smile to your neck of the woods. My thoughts and love I send to you and your family.

Hi HelpingDad

Congratulations! Of everything I've ever been called, aunt is the one I like best. What are the youngsters' names?

Julia

Ryan is 7lbs 2 oz and Cole is 7lbs - Mom made it full term with over 14lbs of baby in her belly - all are healthy and happy - the dad - my older brother sounds in awe - VERY HAPPY!!!

PS just as Trev's little ones have made him fight for every day he can get with them both Ryan and Cole have done the same for my dad and we can hardly believe the day is here!!

Hi there Trev & Deb, sorry to hear about your latest bad patch. Please post when you can with updates, although I realize it must be difficult for you to do so.

At some point in each and every day I'm thinking of you both.

Take care, Love, Mary

Dear Deb and Trev

I don't post very often but have been following Trev's story. You both sound such fantastic strong people and I just wanted to let you know how sorry I was that Trev (and you too, Deb) are going through such pain. I am sure lots of people are thinking about you around the world.

Much love
Sue
xx

Hey Debs Trev sending much love xx

Hi Trev and Debs,

I don't post very often but wanted to let you know I am thinking of you both.

Ken

Hi Debs and Trev


Thinking about you both.

Lots of Love

Tony and Kathy

Hi Everyone
Thank you all so much for your kind thoughts and best wishes. Believe me it's very reassuring to know there are people out there pulling for us.
Trevor came out of hospital yesterday after getting four units of blood and having his medications adjusted. He has basically no liver function so metabolism of anything, meds included is a non-event.
I did feel we were being talked out of coming home. The dr wanted assurance I had support and then palliative care wanted to know if I was sure I wanted to take care of Trevor at home and also that Trevor wanted to be at home. All was well til I got a bit panicky through the night worrying about lifting and all that sort of thing because I do have a dicky back at the best of times and worried that I might not be able to help him when he needs it the most.
Trevor is basically asleep 24 hours a day however he has moments of almost lucidity and quite a few moments of interaction that may or may not be appropriate. He is saying some very funny things but at the same time it's very frustrating for him as he knows what he is saying doesn't necessarily make sense and he feels he's losing his marbles.
I cannot believe the rate that he has deteriorated. It's heartbreaking and I hope and hope (and hope), because I don't pray, that he doesn't have suffering although today pain has been a bit of an issue that he hasn't had for the last few weeks AND it's in different places. Scary.
Trevor's daughter and her son, his eldest son and his wife came for a visit today. It is only about a week since Simon and Lisa were last here and they just couldn't believe the change in him. Very upsetting all round however, fortunately Trevor was oblivious to the goings on most of the time, but at the same time happy to see them all.
I'm sure if he was able to post, he would have some wise crack to get you all smiling, however if he did post, I fear he'd be deleted for his language! My textbooks tell me that personality changes are part and parcel of the toxic effects of liver failure and while he isn't a saint by any stretch of the imagination, let's just say his new vocabulary is both colourful and abundant! Bless him. He's been threatened with the naughty corner if he doesnt' clean up his act.
I could rant and rave but when all is said and done all I want for my dear,lovely husband is that he doesn't suffer any more. Is that too much to ask? I don't think so. He has had to deal with a whole lot of crap over the years and a comfortable, peaceful last chapter would be a fair thing. Please cross everything.
As I said at the start, your thoughts and wishes are very reassuring and comforting and I can't thank you enough for taking the time to care about how we're faring.
It's half past midnight and I'm really tired but afraid to go to bed. I'm such a heavy sleeper and I'm scared Trevor will need me and I won't be able to wake up and function at the same time!!!
I shall keep you posted as often as I can.
Love to you all (from the bottom of the world it seems at the moment)
Deborah
X

Hi Deb

I've crossed everything I can for you and Trev.

Julia

dear deb
i am sorry to hear that trev has become so poorly,i can't imagine how you must be feeling.all we can hope for is no pain and knowing trev he may pick up again in a few days,as they say you can't keep a good man down.thinking of you both.much love shirl xxx

Debs,

I am thinking of you and share your hopes for your dear, kind Trevor. You are a wonderful brave woman and I think its fabulous that you brought Trev home. I know its not going to be easy for you, but its a wonderful thing to have done.

Love

Cathy

Hi Debs,
So, so sorry to hear that ol' Trev is in such a bad way. I think you're amazing for taking care of him at home! So brave! I can't imagine you have time to stop and think - you must be working on auto pilot. I hope the family are doing what they can to support you and you're not trying to do eveything on your own.
Give him a hug from me. & another one for you.
Words aren't enough Debs.
My love to you all,
Michelle

So sorry that it's going this way. You must be exhausted.

I've got everything crossed which makes it a little hard to type!

Please give Trev my best.

Mimi