Trev,
I was advised to take my pain meds regularily - regardless of whether i was in pain or not as it kept me at a level.
I'd do as Cookey said and have a chat with someone about pain managment.
Pull your socks up and get them to sort u out hun!

Hi Liz and Chelle
Thought I'd bring you up to speed re Trevor and his meds since he's pretty much out of it at the moment.
He has been taking his medication and religiously keeps a diary record of everything he takes, so there's no problem there.
When he saw our GP on Thurs, his slow release oxy was increased because he had been having a lot of pain and was taking a fair amount of 'extras' to cover the breakthrough. That, we thought was going to get everything sorted and in fact it did for about 24 hours!
Over the weekend he was still having breakthrough pain inspite of the increased slow release. As a result of that, he is a bit zombie-ish (to say the least!). I spoke to the Palliative care team yesterday and they are coming out today to see what needs to be done to get things under control. All will be well. He didn't need anything through the night last night so that's a plus.
I think I have elected myself as pill dispenser just to be sure he isn't going in with the big guns when perhaps a pistol would do the trick! He's a bit scatty with the steroids on board so we just need to iron him out and all will be well.
Thanks for your concern. You're both gorgeous!
Great to hear from you Chelle. Hope you're well. How are those wedding plans coming along?
Love
Deborah
x

Good on ya girl.I think perhaps its time to move on from pills though.They do not act as quickly as liquid medicine or patches,and you have to have food in your stomach to help absorption and it can be 30 mins before they dissolve in the gut and reach the blood stream.
rob had a patch which releases its medication straight into the blood stream 24 hours a day,and his breakthrough was liquid morphine into the peg or by mouth,and this works almost instantly.Once the body has got used to these the drowsiness and woozy feeling passes and rob functioned perfectly normally much to my surprise.The steroids were our nemesis as they made him growly,aggressive and generally like a bear with a sore bum.

The palliative careteam should be able to straighten him out ,but he will need to be very honest with his pain score.Rob was told to take his liquid morphine whenever his pain rose above a 2,and in the hospice they checked his score every hour.

keep at it love

hugs liz

Hi! Gals,
YES, YES,& YES, I agree with you on all things BUT when you are in my situation and feeling all over the place, the pill taking goes to the back of the priotiry list and all you seem to want to do is quit with the pills and drugs. My greatest fear is to lose control of my body and I believe that the taking of drugs sure as hell takes the control away from me. Today I felt totally away from it and after the visit from the Pallative Care nurse I decided that I was not goingto get on without the pills so decided to try taking Panadol Soluable regually through the day and night to help the other heavy drugs to do their thing.
We had a birthday party for our youngest son tonight and along with the rest of the family here it was really quite hectic and of course Marley and Charlotte were the attention getters.
Back to my problems the pain that I am getting generally stays about 4 - 5 and doesn't seem at times to be far from my "C" site which is to be expected, but at times it migrates to my right hand side toward the back and radiates upward to my armpit, this I think must be my Kidney playing up, but after a while I give in and take somethiong for it in the way of either Panadol or OxiNorm, I have mentioned the patches to my GP and he has thought that what I am on now is suficient, my worse time is about 0500 in the morning and tonight I am going to have some panadol solubles on my bedside table to take when I have my early morning twinkle. I have been feeling really in a daze today and its like looking down a tunnel with the walls of the tunnel blurrey and the middle a little fuzzy(Boy aren't I confusing?). Deb has mentioned that I am always eating, well this is true and the weird part is I am eating all this extra food and that includes fatty foods and I am still retaining my weight, tommorrow will be interesting as I will weigh myself and I have eating a great load of junk food and have drunk about 3 litres of Ice Coffee.
Okay enough of me it is lovelly to have you girls fussing over me but are you looking after yourselves?. Well thats me done I will wait for your replies with a fondness.
Love TREV

Hi Trev and Debs

Just catching up with you all, Trev 3 litres of ice coffee boy that enough to make a bloody horse run around doing hand stands.

It is good to hear that you are eating and keeping the weight on that's really great.

I hope that the palliative nurses have sorted out your pain meds and it great to see that you are still enjoying the parties well done you.

Best to you both

Tony and Kathy.

Hello Trev and Debs and everyone for that matter ,our computer had a major breakdown and has been in for an overhaul feel as if it has been away for years ,talk about withdrawls it is quite scarey the way you really get used to logging on.Have spent a good wee while going through all the posts and latest updates what a lot has been going on indeed .Funnily enough the last straw before melt down was tryng to access the photo albums it takes forever to get going for me and then my computer freezes ,for the life of me i cannot work it out but will have another go .

We have been having a low point with bits and pieces arising but settling into an improvement again just going to take a while till things get more upbeat again .Sorry to hear you have been having problems with breakthrough pain also Trev but see everyone has been advising you and keeping you on he right track .It is difficult to get the right pain meds and keeping a balance with you feeling bright enough to enjoy daily life and keeping the pain under control without rendering yourself sound asleep is a difficult balance to get right but we have always foung the pain management team quite good at juggling this ,takes a bit of trial and error but can be done .You will be the best judge of that Trevor.I do agree with Cookey though the slow release form during day and evening works best as then you can top up with less strong pain killers for breakthrough .

Hope things are more settled Trev and you are enjoying having your daughter staying with you .

Best wishes to you both ,
Bell and Paul.

Hi! All,
It seems that no one is on line and I get lonely when there is no one talking, I know that this not a chat line forum and is more for info and catching up with proceedures that have been done or about to be done. Well I miss you lot and will put a few words down to keep the thread alive.
Over the last few days things have been a bit worrysome as my vision is all up to putty and I have been having bad wind problems (not all from below )that are very noisy and uncomfortable, my stomach rumbles heavily and I have been thinking of taking "Gastrogel" but then the pains arrive and I don't want anything else in my gut. OH! yes the pains? these bloody things have got me in a tizz and I can't take anymore pain relief as I am taking my quota already .
On Tuesday I am of to see my GP for my regular checkup (fortnigthly visits) and to get the results of my latest blood test that I had today. BUT I was supposed to faste before the test and have the test in the morning BUT yes you guessed I had the test at 1400hours and had eaten pizza drunk iced coffee before,I don't know what came over me I had completely forgotten the instructions that my GP gave me .
Deb is busy knitting things for the Grandkids and friends kids Deb hardly stops knitting maybe I should try it as that would take care of the bored state I am getting myself into, during the day when I am not asleep I roam around the house looking for things to do that doesn't wear me out too much, eben after typing this post my body will be looking for a place to crash as my ability to concentrate for any length of time is taken over by the shakes.
Well thats my lot for today hope to hear from all soon and hope that you are all reaching the wellness state
Love TREV

Hello you
i am here skiving off the housework lol.I am rattling around bored shitless!!My Mum is away in Abu Dhabi with my brother,and i really miss the old trout.Usual story,she drives me nuts but i wouldn't be without her.I am having a visit from a young girl in my bereavement group this afternoon.We are going to walk the dog and drink tea and eat chocolate fingers.Lucy is 24 and she lost her Mum 6 months ago.She has never known her dad so is really alone and although she has loads of friends and is a real party animal,she is struggling with life without mum.She is a uni student doing her masters degree in nursing so we have something in common.
Sunday i am going for lunch with Philip and his partner,so i will get to play with Josie for the day.

Windy are you? oh dear that can be a bit antisocial,and darn painful at times,try soda water and peppermint.sounds like you have a busy week next week love so rest up this weekend.
Trev when you have your level of pain honey there is no quota,except for the paracetamol which is dangerous in excess,speak to those docs agin,and keep on until its sorted.

Did you happen to catch the news that Peter Tork from the Monkees has just undergone surgery for tongue cancer? Maybe a celebrity even a 60's one who has the disease will raise the profile in the public eye.

My boss at the hospice has just flown home to sydney,for her annual months leave,so i hope your weather is being kind.


Well i better go and push the hoover about and put the washing in the tumble drier.

keep your pecker up

love and gentle hugs liz

Don't worry Trev you're not alone - I may not write much but I am constantly looking to see what you are up to! I'm sorry the meds have made you fuzzy but your message seemed perfectly fine to me in fact you really mad me laugh - what with excess wind and then forgetting to fast and scoffing loads of pizza!
I don't wonder Debs is knitting like mad - she needs to knit you a naughty chair! Hope the grandbabies are well - such a joy aren't they Trev. Anyway, I must go as I'm supposed to be working.
Have a good weekend - and a huge hug to both you and Debs
Much love
Margaret

ssshhhhhhh

I'm supposed to be working too - but like to pop in and check what you are up to Trev.

I keep forgetting I have drunk things and eaten pizza too ....... then I wonder why I haven't lost any weight !!

Would love to see that knitted naughty chair.

Love
Winnie xx

Hello Trev ,great to check in and catch up with your news ,try not to worry about your pain meds it takes time to get the right combination .Paul has an awful bother when he starts a new regime as he is very susceptable to all drugs and the lowest dosage knocks him senseless so he always need to start off slow and build up plus like you the steroids make him ravenous and he is always weighing himself and I am allways taking his trousers in to get let out so we are now at the stage they can no longer be made larger .Paul is on a new pain killer and unfortunately apart from tuneful wind he is having hellish constipation becuase he would not take a laxative syrup along with it so after much squeeling and discomfort we had to resort to the old and trusted suppositories so we have now got that sorted out. Sorry Trev maybe too much information but just thought we were maybe all in a sharing mood ,lol.

Latest here is Paul's disposing of things and he forgets what he has done sometimes this has always been an issue and we blame the Chemo !!.Today we had a new fireplace put in and finally was time to put in the new fire .Paul had carefuly unpacked everything and same day we took all the packing to skip which was yesterday I asked him had he checked that nothing was left in boxes and I was told to leave the rubbish as all was fine .well ....needless to say he had thrown out the bag of fake coals which should lie on top of grate so had to phone up and reorder lol.I know you know if that had been Debs we woman would have been careless ! still we had a wee chortle about it there will be some coming in the post soon.

Hope you are feeling more relaxed today and the medication settling in to a more managable regime .Talk soon,

Bell and Paul .

Hi Trev

Haven't been on too much, like Debs I'm hooked on my knitting!

I can certainly relate to "fuzzy eyes" or in my case one fuzzy. You mentioned macular degeneration in one of your other posts. Well I had to go to the eye emergency recently and they thought that was what I had. Saw a specialist and he said it is cyst but is very deep so they won't investigate unless it starts growing just going to monitor it for now.

I really hope they can sort out your pain meds soon.

Remember Trev you are never alone,we are always here sometimes I suppose the time difference means we not be on at the same time as you though.

Well Trev I'm going back to the knitting.

Love from one fuzzy eyed person to another

Sending love to you both across the oceans

Mum
xxxx

Trev, Hope things are going a bit smoother for you as your read my post. I too like others am in and out on this site without posting.

After a few major set backs myself i am still kind of in limbo and don't do much posting since i was awaiting the outcome.

I am doing fine now, but still have not brought myself to grips to update my story.

This is one rough ride we are on and I look up to tough guys like you and Anath who make some of us realize how lucky we are

hi trev
how you doing? hope the pain meds are working well for you now mate.i tried the morphine patches but had a reaction to them so i went back on the mst.nice to hear the grandchildren have been round,i looked after our youngest little laila today and she damn near wore me out.where do they get all their energy from?cost me a bloody fortune round the shops i cannot believe how much a childrens comic is these days,£3.75! daylight robbery she was attracted to the free lip gloss that came with it,what with sweets and dinner from the chippy that was £7 gone in a couple of minutes lol.i wish i could knit like deb does but my mother gave up with me i could not get the hang of it.when my eyesight allows me i do crosswords or i am on the p.c.well you and debs take care mate.i often think you of you down under.oh dear that sounds bad doesn't it lol.love shirl xxx

Hi! All,
Gosh where do I start? I almost feel as if I am important or something but I am just an ordinary bloke that has found a group of (to me) very important people with their lives screwed by the dreaded curse "Cancer". I have found this amazing group so invaluable to me as to bring tears of joy and Love, people that have gone down the "C" road and suffered from it or have people that are near and dear to them suffer the cruel hand that is dealt to them.
Every chance I get (which is most of the day)I log on to this site and check up on my friends to learn a bit more of them and it never surprises me to get something humorous or sad, But today I was given the greatest surprise ever so far and the joy it gave me brought tears to my eyes and it took quite a time for the emotions to subside, THANK YOU ANGIE THANK YOU.
I should also thank ALL my Friends that have contributed to my continuing thread as without you all this would have stopped a long time ago, again THANK YOU.
LOVE TREV