Day 5,
What a day after having to walk to the Radiology Dept (which is quite a distance from the car park) I was really quite buggard. I had to have a scan of my Stomach they had me standing for 30 minutes( with the occasional "turn to the right a little" & " turn a little the other way" whilst the Contrast made its way from my mouth to the Duodenum, they are trying to see if I have blockage in the surgical site, it was flowing but ever so slowly but flowing.
I had to sit down for a hell of a time and when we got up to go to the Chemo Suite to have my PICC line fixed I was rather wobbly and thank god for Deb as she was a good leaning post. Then it was of to the R/T Suite to have my 5th treatment. I am now having aches and pains quite reguarly now and this is only Day 5.
I don't quite understand "Bloggs" and i wish to thank all of my friends who have responded to my rambles.
TREV

Gooday Trev, keep up the good work.
May the force stay with you, regards

I'm just browsing and have read Trevor's last post (oops! Do all services (Army, Navy, Air Force, everywhere play the last post? ~ that's not the one I mean! LOL)
Saying he had to sit for a hell of a while was a bit of an understatement! Since he wouldn't allow me to get a wheelchair for him, we decided to make the trip to the chemo suite in stages. The main foyer of the hospital was the first step ~ about 150 yards. By the time we got there, he just collapsed and proceeded to fall asleep for ..........an hour and a half!!!! Luckily there was a pianist from the Adelaide Symphony Orchestra playing so there was some entertainment! She was a great accompanist for Trevor's snoring. (Only joking)
Fortunately today he has a few more beans in him and even managed to cook a barby for our boys who came to do some jobs. A very nice day all round.

Hey Chelle ~ that image is a tad scary, don't you think?????
Love to all
Deborah
xo

Trev, if your legs, knees and other, er, bits are anything like Bills, I should keep them within the sanctity of your family.

However, stay positive, keep us all going like you always do. Good lad!

Day 6 R/T
After a great weekend with my boys coming around and helping do some rather large jobs that needed to be done and as I am not quite up to it my boys took over (how fantastic).
The 6th R/T was rather a non event and you feel that it is all bullshit and wonder if it is actually doing anything, However following the R/T I had my PICC line redressed and my new Chemo bottle fitted I asked the Nurse why I am not getting to sleep at night yet during the day I am totally wacked(I have not been having a good nights sleep for some time).
The Nurse got the Onc Doc to come and see me and he prescribed TEMAZEPAM sleeping pills and said to take 1 - 2 when required, this I am not too happy about as I have never been one thay needed drugs to get me asleep so I will stay off them until I get desperate.
A good thing came from the weekend work as it brought one of my boys a lot closer to me as we have been apart for some time and to have him with me twice in the month and him being so loving made life more worthwhile(sorry about that). Deb is still running me around and still giving me heaps if I do things that she thinks is too much, but I love her heaps.

Hi Trev

I see that your on-line it's 1.30 lunch time here having a cupa of tea have just logged on to see whats happening.

What's the time where you are? It must be in the middle of the night?

From what you been saying it sounds like the old body clock is out of a alignment, it might be worth popping the sleepers for a night or two to see if it straightens it out, its a bummer having to take them but maybe worth a try.

Just been reading your jokes, keep them coming, we are all thinking about you.


Take care


Tony

Hi trev

Glad you had a good weekend and lovely that you got closer to your son. Glad too that Debs is watching over you and not letting you over do things!! Sorry to hear about the sleep pattern though its a bummer when your body clock gets messed up. Like Tony said if it doesn't sort out soon maybe you could just take a pill for a couple of nights to get your body back in a routine.

Sending loads of love and positive vibes across the oceans to you and Debs

Mum
xxxxx

Hi! Tony,
Yes the time difference does make it a challenge and there is a 91/2 hour difference between us and I think it is that we are ahead of you (only in time LOL) It is 1140am here now and I usually stay on line all day and night as my sleep patern is a bit wonkey so I occasionally get up in the middle of the night and check my mail and Posts.
As for my jokes I have such a lot BUT some require a picture and the MCF joke box doesn't seem to allow sketches or pictures(I don't meen naughty pictures)
Trev

Hi Trev

If the jokes are suitable for this audience, you could upload jpeg picture to the Members Photo Album section.

Best wishes
Vinod

Hi! All,
Thankyou for your replys and Doc I have problems with picture trasfer but will try. And yes my jokes are suitable for all ages (well there are a couple ooorr maybe a few that would be a bit Riscay)
Day 7 R/T
Managed to get to the R/T suite on time and then had to wait for 45 minutes to get undressed and wait (Freezing to death), however one shouldn't complain they are doing a grand thing to keep me alive. I am having 45gray's over 25 sessions, then 5.1grays over 3 sessions????. anyway they zap me between the base of my Ribcage & my Belly Button in 3 spots (boy wasn't that interesting). After the RT I saw the Dietician and he cleared me and said Deb is doing the right thing with my food intake, then next came the Doctor (a trainee doctor spoke to me first) then a new doctor came in and said not too much, there's always next week.
It's amazing how quick the fatiuge takes over with just the second treatment after a good weekend off.

Your doing well Trev, day 7 thats one week over already! Each day is one less to do.

Love
Mum
xxx

Keep up the good work Trev, you're doing great.

Hi Trev

Thought I'd have a quick update before bed. Glad to hear you haven't lost your sense of humour. Hope the radiographer's playing you some good music. Hope you and Deb manage to get some sleep. Keep at it!!!

Best wishes


Chris

Hello Trev,

I haven't been on in a long time and I am so sorry to hear about what you are going through. The world is definitely an unfair place. You sound like a champ though, so strong. I have not had the F-5 either, but the cistplatin was my drug of choice back when I had chemo/rt. I had mine once a week though and that was tough and the RT twice a day. So the fatigue your having with all the travel and the treatment is so understandable. Hang in there and you know you have all of our prayers and best wishes.

Leann

Hi! All,
This entry will be for 2 Days as I am not coping to well with the treatment and find myself looking for somewhere to sit and nod off even though not for long.
Hi! Mum, yes day 7 is like a week but with 5 weeks to go (well really 4.1 weeks)it is becoming closer to the end.
Hi! Angie, yes I know that I am GREAT but try telling the body that.
Hi! Chris, I hope that my sense of humour never goes as that is one thing that keeps me going.
This one for You.
"Every day a male co-worker walks up very close to a pretty receptionist standing at the office coffee machine, inhales a big breath and tells her that her hair smells nice.
After a week of this she can't stand it anymore and takes her complaint to the Personnel Department and states she wants to lay a sexual harassment grievance against him.
The Human Resources supervisor is puzzled by this decision and asks, "What's sexually threatening about a co-worker telling you
your hair smells nice?"

"It's Keith, the dwarf!" "

Hi! Leann,
Yes for my first dose of Chemo that I had when I had Head & Neck Cancer I had Cisplatin once a week (which took about 7 hours to go through)F5 seems to be fine except for my irregular sleep pattern and the uncomfortable bottle connected to me 24/7(when I am asleep I am concious of it all night). My R/T is only once a day but oh! so tiring.

Where was I? Oh yes Day 8 & 9.
Day 8 was a bummer as By the time I got home I could hardly scratch my self and got onto my Recliner Lounge and was asleep in minutes for 2 hours and then I worried that I wouldn't get to sleep that night BUT I did and slept through the night until 0600hrs.
Today before the next treat ment I was starting to fold again and by the time we got in for treatment 9 I was having problems walking to far.
Day 9 after arriving an hour and half early(one should read the appointment card more often)we sat down for a long wait but where lucky to go in after ahalf hours wait (COOL) again the room was freezing and the little pillow case that they cover me with certainly doesn't keep me very warm(embarresing)the treatment was a bit longer with a change of settings but soon we where on our way home and more rest.
I find that I am getting a very sore back and pains arround my Kidney Area, and thats not covering the total lack of energy,21 to go.
Hope this finds you all well and warm as I am freezing .
TREV