On the 8th of September 2008 at 0820hrs I started my next lot of R/T & Chemo Treatment at the RAH.
It was a beautiful day and the first appointment was with the R/T team who set me up on the machine and ZAPPED me this was almost a non event as no beam shot out to transform me so I was a little disapointed(NOT). Next I had to have my PICC Line adjusted and then of to the Oncology Suites for 2 packs of Whole Blood(Iwas a bit Anemic), this took about 41/2 hours so I slept, next the Nurse fitted the Bottle of 5-Fluorouracil to my PICC Line and with all the instructions we were out of there at 1700hrs, home by 1800hrs asleep by 1830hrs until 0900hrs the next day today.
God that is one hell of a sleeping potion, have any of you had this type of treatment and if so what were your side effects?. My last lot of treatment last year wasn't so quick at knocking me out. I will keep you informed of my progress if that is OK as this is my LifeLine, the RDOC.

waaay OK - know nothing of 5-F as my dad had the cistplatin - please keep us posted...

hi trev
i had the 5f and cisplatin and one called doxytoxial i think it was called.the one that caused me problems was the cisplatin.but none of them made me sleep,only the sickness meds conked me out for hours.good luck trev keep the fight up we are all rooting for you fella.love shirl xxx

Day 2
Deb and I went to the Royal Show with Deb wheeling me around in a wheel chair (COOL) we only had about 2 hours as my next R/T was the reason we went to the City.
R/T 2 seemed to take longer and I asked them to explain the proceedure as the machine seems to stop and start all over the place and the reply was that first up they have to make sure I am lined up properly on the table and this takes 2 zapppps with a low powered xray scanner, then the big sucker turns on the left hand side of me and radiates me for 10 seconds or so then it takes a go of me from the top, same again & finally the machine zaps me from 45 degrees on the right side. Simple HUH well lying there naked is a bit embarressing, so far no side effects apart from a little bit of reflux.
So far I havent fallen to sleep and thats a plus. The R/T Dietician and Doc have suggested that I have a PEG fitted in case I start having Problems eating then Deb can just squirt Ensure down the tube when I stop eating YUK, I am not to sure if I like this but will monitor my eating and maybe think about it later.

Exhibistionist!lol.

Dont you leave it too long before getting that peg cobbler better sooner than later.

liz

Trev, of course we want to know your progress! We are all still rooting for you on here. Keeping you and Debs in my prayers.

Take care

Loads of love coming across the oceans to you.
Mum
xx

Trev, even with the peg I lost 45lbs (not sure how that is in kg) without the peg I would have totally withered away. The R.T. made it almost impossible to swallow even ensure or the smallest pills. I wouldn't chance it, get the peg and if you don't need to use it, well, that's fine.

Trev, We Want Pictures! We Want Pictures!

Take care,

Mimi

My god mimi

save us from that!!!lmao

Whoa Mimi. Settle, seeeetttttle! Before you go getting too excited about the pictures I'll just point out that Trevor's bones are rattling with the cold these day and given the cool atmosphere of the treatment suite, I suspect any pictures just might be a tad UNDERexposed (if you know what I mean!) LOL
Cheers
Deborah

Every day's treatment is one less you have to go through.

LOL at the pictures - spare us please !

Day 3
Hada late appointment today and even though it is early in my treatment it is already starting to wear thin, the travelling there and back are done with me most of the time asleep and I feel for Deb as I don't comunicate to her during these trips. The Doctor did say that I would suffer from fatuige because of the RT hitting such a lot of important Organs(not the ones Deb is talking about "SHOCK"). One of the effects of the treatment is that I will lose my right Kidney and some of the use of my Pancreas, I know one can survive on one Kidney. At present I am getting pains in the area of my Kidneys(I have had problems with my Kidneys before so know the type of pain involved). Eating is something I do because I have to if I din't have to eat I wouldn't as I sure as hell don't feel hungry at all.
Thanks for the responses to my preamble and I feel a lot of goodness coming from all my friends overseas.
TREV

Hang in there Trev - we are all thinking of you and routing for you

Love Chloex

Day 4.
What fun we got to the suite early, thinking we would be out quicker and home before the heavy traffic. We had an 0820hrs appointment and that was to be followed by a Scan of my Stomach contents, but the R/T gadget broke down so I didn't get into the RT till 0930hrs and the Scan was to to be at 0900hrs and we didn't get there until 1015hrs so the scan is now tomorrow am.
I am feeling more and more knackered every day and find it very easy to lay down and sleep(I do restrict it to 1 hour at a time). The RDNS Nurse called in to change my Stoma Bag when we got home.
Watched the movie "Hancock" with Wil Smith to night, a Good Funny movie. Have anyothers seen this movie?
TREV

Hey Guys,
It's a good idea keeping up with this blog, it may help others some day.
Trev, i feel exhausted just reading it all!
I've seen Hancock, it's really good.
Thanks for the naked mental image! *lol @ Mimi, down girl!