Hi guys
below is copy of my very first post exactly 2 years ago today.It was answered very quickly by 200 mnutes,Lorraine E and of course the very lovely Michelle,Vinod,Pauline and the unbelivable David and Susan,all names i am very glad to see are still around for all you new comers.This site and OCF and the very special friends i have made over this time have become like my family,and i would never have survived without them.Thanks Vinod for providing us all with the means to be a part of it all

love and hugs all round

Liz

quote:

Hi my name is liz and my husband Robin is 44 years old and about to embark on the roller coaster ride that is radiotherapy.He was diagnosed with primary scc of the right side of the tongue and a secondary tumour on the left side of his jaw and neck on December 8th.Since then he has had the primary removed with laser therapy, had a bilateral radical neck dissection and removal of the secondary tumour.This treatment is being finished of with six weeks off radiotherapy to both sides of his mouth and the floor.This was decided to be the best treatment because tests and scans have not revealed how the cancer spread from the right to the left side so they do not actually know if they have got all the cells.I am a long since retired SRN and have read a great deal about radiotherapy and i would be very grateful for any tips,help and advice on how to deal with internal and external side effects of this
aggressive treatment.
Robin is a blue eyed fair skinned red head,will this make skin damage worse?What are the best cremes and lotions to use,what should we avoid?How long before eating becomes difficult .Does it hurt? will he be able to work?(he is a plumber)i have a million questions maybe someother peoples experiences will help me to help him.I would be grateful

Hi Liz

Reading post as I do most days to see how everyone is doing. So much as happened since those first postings. 2 year tomorrow (20th)is when Dave got the news he had a new primary for the second time. We are at the hospital for check up on the 4th, so keeping everything crossed.
Dave and me often chat how the site kept him going in those dark days, and how he has come on, aswell as all the people who have supported us.
It always lovely to read the posts from the old crowd and keep up with how they are doing.
Keep in touch.

Love Dave & Sue
xx

Coooeee! Cobber,
Happy Aniversary for the aniversary that we really didn't want to cellebrate.
Yes I have looked back at dates when things happened to me and thought "how time does fly when you are having fun and wondered what the healthy people are doing?" and then I think you "Bastard" but I look at all the new friends that I have found in the Forum and what joy I have gotten from reading the Posts that appear regually in this site. The site has answered quereis that have been screwing my mind with worry and there have been times when a new poster will bring something new to the site and you know that you can offer some hint in their care by having been through it yourself.
I always stop and check the site whenever I pass the laptop and with just a press of the F5 key get an update on what's going on(the time difference doesn't help much at times)all over the globe .When I first joined the site I was a bit reluctant to give every one my bad luck stories until I found that I wasn't the only one with this dreaded disease & with the Doc's help got stuck into it and here we are again, there have been times when you could laugh at some post and there are times when you can be angree with some one's post that may not have been appropriate But in all it has been a fantastic site with fantastic members SO keep up the Posting and good luck to yuou all
LOVE TREV

Ah Liz,

It's nearly midnight here and I thought I'd check in one more time before turning the lights off. I read your post and the tears just flowed.

Look how much you're learned the hard way since that naive, poignant first post. I kinda' fell apart when you asked, "Does it hurt?" That's the question we all ask at first and as it turns out, that for some of us is among the least of our worries. Funny, that.

Your statement, "Robin is a blue eyed fair skinned red head, will this make skin damage worse?" My Dad was a green eyed fair skinned red head and died of lung cancer. As it turned out for all of us the skin damage was among the least of the worries, yet again.

You are such a strong presence both here and on the OCF board (that one intimidates me! I just read and don't post; to me it's a little too formal and impersonal, though with a wealth of info). So many have to thank you for your knowledge and kindness, your updates about Robin's illness and the relationship you two had, everything you shared, and the work you've done since he passed away. You explain things so well, express emotions with such honesty that it hurts sometimes to read, but is so appreciated. You also recognize BS when it's spewed - I appreciate you for that as well and am glad that you took the time to acknowledge that with me.

Thanks cookey, Liz, sweetheart, buddy, mate, friend. I wish you well and hope to meet you some day.

Mimi

Hiya Cookey
It's just about 2 years since I pressured my mum into going to the docs to get the recurrent / persistent ulcer on her tongue checked out.

She didn't actually go until early March, but had the op on 24th April.

The rest, as they say, is history !!

what a place this is.

Hi Liz,

Good to hear from you, hope you're doing OK. I must agree that this site has been fantastic for us. I don't know how we would have got through the treatment without the people on here. Just knowing that everyone is out there ready to offer words of support has been very comforting for us throughout all of this.

I try to log on every day as I love reading Trev's blog. It's like reading a novel and I wait every day for the next chapter. I am now starting to even picture everything that Trev is talking about.

Keep well Liz. With fond wishes.

Lorraine & Robert (who's doing well and has just gone to 6 monthly check-ups!)

pass the tissues