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total tongue removal
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Picture of Shoshana
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Dear Susan,

I´m sorry to hear about the news you had yesterday. I wish you and Brent the strenghth to go on fighting
Shoshana, from the antipodes (Argentina)
 
Posts: 86 | Location: Buenos Aires | Registered: 10 September 2009Reply With QuoteReport This Post
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Thank-you so much Shosana. That is very kind of you.
Blessings.
Susan
 
Posts: 15 | Location: canada | Registered: 14 September 2010Reply With QuoteReport This Post
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I am so very sorry to hear of your news also - words are hard to come at a time like this but you have many here who care and support both of you!
 
Posts: 311 | Location: USA | Registered: 16 July 2008Reply With QuoteReport This Post
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Thank-you to all for your kindness. Brent has an amazing spirit and there is always hope.
Blessings to all.
Susan
 
Posts: 15 | Location: canada | Registered: 14 September 2010Reply With QuoteReport This Post
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Thank-you so much! We very much appreciate it.
Susan
 
Posts: 15 | Location: canada | Registered: 14 September 2010Reply With QuoteReport This Post
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still thinking of you down here SmilerSmiler
 
Posts: 311 | Location: USA | Registered: 16 July 2008Reply With QuoteReport This Post
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Thank-you very much. Brent is still remaining positive and is still keeping busy. We appreciate your thoughts.
 
Posts: 15 | Location: canada | Registered: 14 September 2010Reply With QuoteReport This Post
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hi i am ruzbeh, my father has been suggested with complete tongue removal as he is 70 yrs and not been advised Chemotherapy.

we have been spell struck as right now he swallows and eats normally , and his voice is a little hazy.

i want following ansers to questions:

1. will he able to eat normal food without pipe?
2. what would be survival rate ?
3.he has been an absolute talkative person, i am npot sure if he sahll be able to bear sub total glossytochomy?
4 shall appreciate if some people could answer my qs who have gone thru them selves. or experienced a near one having undergone the said trauma...
 
Posts: 1 | Location: mumbai | Registered: 05 March 2011Reply With QuoteReport This Post
Picture of Julia
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Hi Ruzbeh

The best suggestion I can offer is to read Sharifah's postings. She had a glossectomy some time ago, and her writing might give you a good idea of what to expect.

Concerning your dad's being a talkative person and the possibility of a "sub total glossectomy": I've always been quite a talker, so my own diagnosis of tongue cancer was both surprising and traumatic. I had a hemiglossectomy and resection and speak as well now as I ever did. (Even before my operation, folks around me needed Julia/English-English/Julia subtitles.)

Dr Joshi would be the best person to answer your more technical questions.

Hoping for the best for you and your dad!

Julia


Howdilly doodilly, survivorinos!
 
Posts: 827 | Location: Hollywood on the Huron | Registered: 15 February 2008Reply With QuoteReport This Post
Picture of Dr Vinod K Joshi
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Hello Ruzbeh

You will find Sharifah's blog, 'The Tongueless Talk' very informative.

You dad will still be able to talk but different. He will most likely feed through a PEG but perhaps learn to swallow drinks.

Best wishes
Vinod Coffee


Disclaimer: Please see your own dentist/doctor for a proper diagnosis as my words should not, in any circumstances, be taken as dental/medical advice.

"If you see what is small as it sees itself, and accept what is weak for what strength it has, and use what is dim for the light it gives, then all will go well. This is called Acting Naturally."
Lao-Tsu, Tao Teh King
 
Posts: 3777 | Location: St Luke's Hospital, Bradford and Pinderfields Hospital, Wakefield | Registered: 14 December 2002Reply With QuoteReport This Post
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