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So far at my follow up apppointments each 6 weeks the ENT surg has looked down my throat witha scope, felt my neck and asked how I am. Given that there is a 1 in 3 chance of this Ca recurring and that lung and oesophageal secondaries are common I am amazed that I have not been offered any type of scan CT or otherwise since finishing my radio/chemo treatment 24/12/04. I am going to challenge him at my next app on Thursday but in the mean time thought I would 'ask the audience' for their views on this. Await your replies,
Regards Sue |
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Hello Sue My experience is that unless you complain of symptoms of some kind then the consultants are not keen to scan. It was only when I had a scan for pain in my face that nodes showed up in my lungs. I have recently had another major op and had a scan last week (yet more pain in my jaw) and get the results on Thursday - which will also show whether the nodes in my lungs have changed. We spend our lives living on a knife edge... I am having no treatment for the lungs at this stage.
Nine months does seem a long time not to have had a scan and I think you are right to take this up on your next visit. Regards Brenda x |
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Hi Brenda thanks for your reply and I am sorry to here you are living on the knife edge especially until Thurs. I hope you get good news. I will follow your advice and let you know what happens on Thurs at my app. Seems thurs will be a difficult day for us both! Good luck
Sue |
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PS. I think the radiotherapy has addled my brain! My spelling and grammar have never been so bad!
Sue |
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The Mouth Cancer Foundation Online Support Group
Mouth Cancer Forums
Members Forums
Questions & Answers
Follow-up appointments