I am looking for a contact to offer myself as a subject for research on HPV-16 that has become cancer. I was successfully treated last year for throat cancer. I just found out yesterday after a soft bronchoscope that my trachea and bronchials are now full of papillomas. It is not sure if these have travelled into my lungs. I read in this site that John Hopkins is looking for people to try treatments on but there was no contact information. Does anyone know who to contact or how to contact them.

Welcome Kat -it might be worth trying

www.hopkinskimmelcancercenter.org

I think there are links to their various research areas there. If not there's probably a """contact us""" link

Good luck

Hi Kat

Pikeman's right. You should be able to find contact information at Hopkins Kimmel Cancer�Center clinical trials Good luck. By the way what's RRP? Did you mean HPV?

Best wishes
Vinod :coffee:

RRP is recurring respiratory papillomatosis, a form of HPV which occurs in the respiratory system. It is extremely rare to have HPV16 in the mouth or throat and even rarer to have it in the trachea and bronchials as I do now. After treatment of throat cancer last year, which was successful, I thought that I was done with it. I am a member of another website for adults and/or parents of children with RRP called the RRP Foundation. It is an orphan disease that is fast gaining recognition as it is beginning to show up more and more often in adults. The foundation site has been my most reliable source of information to date as well as a strong support. A researcher who monitors the site did the DNA typing on my papilloma biopsies last year and presented information at a doctors' conference in Paris last summer from those analyses. They have recommended my trying the new vaccine that has been put out by Stressgen Labs.