well he is out of surgery he has had to have 3/4 of his tongue removed and his neck very diseased , am exhausted and emotional will see him tomorrow will find out more and post . he gave thumbs up to registrar to let us know he okay...

Good that he is out of surgery and giving a thumbs up, charly - how long was he actually in surgery for? You must feel completely wrung out. Try to get some sleep now and let us know how things are tomorrow.

Thinking of you both
Love
Gwyn x

not sure he was due to go in 6.30 but came out about 8.30 tonight will know more tomorrow thanks for answering gwyn am on my own nice to know friendly face out there x

Hi charly

Wondering how you are doing today and how things are with Nigel?

Love
Gwyn xx

Hi Charly how are you both. It is so draining isn't it. Thinking of you

mum
xxxxxx

hey gwyn he's doin good thanks really tired wrote down that he would see us tomorrow wants to keep his strenth to repair himself , bit emotional but very positive , we haven't seen the surgeon yet have a million questions i want to ask , having a good root around this site

thanks for your interest in us it means a lot to me and i'm sure it will to nige

sorry missed you mum .don't be nice to me you both just made me cry xx

charly

When you see Nigel please tell him we are thinking about him. Made me think back to when I was in hospital with a trachy and had to write everything down; it was very frustrating - people (usually the very busy nursing staff) would ask me a question and then not wait for me to write my reply, but just answer for themselves! Tell Nigel I sympathise if that's what happens to him.

Hope you find everything you need to on the site and good luck with your meeting with the surgeon.

Do make sure to look after yourself as well!

Love

Gwyn

just returned from visiting nige and i'm amazed to find that he is talkin ... he only had the op on monday . he is mega determined to deal with this . he has his buddah hanging from his feed/drip stand .he looks fantastic too he is a bit of eye candy for the nurses i think

Fantastic news!

hi all , loads happened this week nige got an infection in his neck but came home then his neck kinda burst so we took him back in much better again now hopefully home tomorrow

Hi Charly,
Just read about Nige's neck. That happened to me too while I was in the hospital, a hole just opened overnight and I was leaking disgusting brown gunge!. They ended up fitting a colostomy bag of all things over the hole to let all the stuff drain out. I think there are a few others here who have had the problem too. Unfortunately it can happen very easily, it's the nature of the area operated on.
It may take a while to heal but tell Nige to hang in there, it will do eventually.
SusieR. x

thanks susie just come from hosp he looks n feels fantastic they keepin him in till it has drained completely (not colostomy bag thank goodness i used to make tham in a factory job i had one time lol) he is walking round the hosp and grounds 3 times a day to build up his fitness and getting those (slimfast) type things down him too . hopefully bringing him home tomorrow after outpatients appointment.

just found this and can hardly believe that it is almost a year since i posted on here desperate for help and now Nige is back in Thailand recovering and hopefully enjoying life. I don't post often but i do have a mooch through every couple of days to see how everyones getting on . Thank you for all your kind words not just to me a year ago but to Nigel as he has gone through his journey these last twelve months . your support has been great .

Hi Charly
I can remember clearly the panic I felt when, after picking up your original posts, I logged on and saw Nigel's picture!!! Not to mention Vinod's calm response!!!!
I was thrilled to read his (Nigel's) post, was it last week or the week before, saying he was having a great time in Thailand? Is he living there or picking up on a holiday cut short?
He has a great attitude and no doubt will continue to go from strength to strength. Please pass on our regards and congratulations for making it through the battlefield! Likewise to yourself. What a great support you have been for him. Well done, it's not an easy road.
Love
Deborah