i need some one to talk to about a larengetomy
am really scared.hope for the best.this is all new to me

Dear Vinod,
I initially had this problem of not being able to smell as I had the same sort of problem that
Joel had - only that in his case they tried to reconnect his his throat - by which I imagine though he can hold his stoma and talk and eat orally but would not be able to smell. In my case the moment I block off my stoma to talk or use the gizmo that you have seen, my sense of smell is very normal just as my taste buds are.
If Joel is reading this - can he smell when he blocks his stoma. In my case my larynx have not been removed which gives me the power of speech and breathing ( to an extent) and smelling while I am talking. I think you could make sense of what I am talking as you have seen me.
Lots of love and Hugs
Ananth

leity43,
I see you are the US. There is a new support group out of Locust Valley, NY they have a website: www.spohnc.org Maybe they can point you to one locally in your area or close by. the phone number is 18003770928.