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Picture of Dr Vinod K Joshi
Posted
quote:

Red Door Communications is a public relations and medical education consultancy specialising in healthcare. We are working with Merck Pharmaceuticals and patient charities in the area of head and neck cancer, to increase understanding about this disease and inform people about the support offered by Let’s Face It and Mouth Cancer Foundation via the media.

As such, we are seeking people who are willing to talk to journalists about either their own experience or their experience of caring for a loved one who has head and neck cancer.

  • Why are we looking for people to talk about their experiences?
    We will be speaking to journalists about head and neck cancer, its impact on people’s lives and the range of treatments and methods available to help manage the condition. However, journalists often like to help their readers understand the topic by including an account of an individual’s personal experiences – often referred to as a ‘case study’ or ‘case history’.

  • What will it involve?
    A representative from Red Door Communications will contact you to have a chat over the telephone. We will then write a testimonial based on our discussion, which will include some information about you and your experience of either living with head and neck cancer or caring for a loved one who has been diagnosed with head and neck cancer. We will then send this to you for you to review, giving you the opportunity to ask any questions or amend as you wish and return to us.

    N.B Red Door Communications will not proactively request information about side effects. However, should this be discussed, details will be supplied to Merck Serono who are legally obliged to register this information.

  • Before speaking to the media
    Red Door Communications will make a note of the type of media that you would be happy to speak with, e.g. newspapers, magazines, radio, television, and when we receive a journalist request, we will gain your permission to provide them with your previously approved testimonial of experiences. If they wish to speak to you in person, we will call you to agree a convenient time for you to talk to them.

    Before any dialogue with the media, we will talk to you about the journalist, the publication they are writing for, and ensure you are fully prepared and comfortable with the types of questions they may ask you. If at any point you do have any queries or concerns, someone from Red Door Communications will always be on hand to help.

    We anticipate that the typical story will include information about you (your age, family circumstances, what you do or did for a living and what your leisure interests are). The main focus will be your cancer journey and how you have coped with head or neck cancer (when you were diagnosed, how you have been treated and the impact on you and your family). If you are talking about the experiences of a loved one the journalist may also want to include information on how it affected them and your relationship. In some instances the publication may request to feature a photograph of yourself or your partner. In this situation, one of the options is for you to loan a photograph from a family album if you are happy with one being used. Alternatively, you can let us or the journalist know if you would rather a photograph is not used. Please do let us know if you would be comfortable to have a photograph included.

  • Speaking to journalists
    Journalists know a little bit about a great many things so you will be the expert on head and neck cancer in the conversation. Below is a list of points that the journalist may be interested in discussing with you:
    • Your experience of head and neck cancer and the impact it has had on your life
    • The range of treatments that you have been prescribed and the impact that they’ve had on the condition
    • Issues that have affected you along the way e.g. your quality of life or side-effects from treatments

    Discussions with journalists are usually conducted on the telephone, sometimes they are in person. Red Door Communications can accompany you to any meetings or to a TV or radio studio if you need moral or practical support.

  • Waiting for the article to appear
    Red Door Communications will call you to check that you’re happy with how the discussion went. Journalists very rarely, if ever, provide a copy of their article before it is published, but will give us a rough idea of when it is likely to appear. If there is anything that you feel you want to clarify after your discussion with the journalist, we can pass this onto the journalist for you. We will also ensure that you’re sent a copy of any published articles for your records.


What next?
If you are able to support our work by sharing your experiences with the media, please call Rachel Bannister or Alison Bly at Red Door Communications on:
020 8392 8045 / 020 8392 8062 or email us on: rbannister@rdcomms.com / ably@rdcomms.com
If you call out of office hours and reach a voicemail, please leave your name, telephone numbers and a time that it will be convenient to reach you and someone will return your call.


This message has been edited. Last edited by: Dr Vinod K Joshi,


Disclaimer: Please see your own dentist/doctor for a proper diagnosis as my words should not, in any circumstances, be taken as dental/medical advice.

"If you see what is small as it sees itself, and accept what is weak for what strength it has, and use what is dim for the light it gives, then all will go well. This is called Acting Naturally."
Lao-Tsu, Tao Teh King
 
Posts: 3266 | Location: St Luke's Hospital, Bradford and Pinderfields Hospital, Wakefield | Registered: 14 December 2002Reply With QuoteEdit or Delete MessageReport This Post
Picture of Paul
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Hi Dr J, I have put my name foward as I think it would be a great idea to get ANY media coverage possible for Mouth & Neck Cancer and to reach people who do know know about the fantasic site Smiler or people who cannot access a comptuer.Ananth seem to be doing a great job in India as far as media is concered and I know many there will be alone with the Cancer and their fears, Pity we cant get him to come here and show us how it is done profesionally Roll Eyes
He is a great guy and such a pleasure to read his story of how brave and the way he copes and also tries so hard to help many people amazes me,as with Vickie too.

Paul

PS will not forget my friends when im famous Big Grin
 
Posts: 791 | Location: London England | Registered: 06 March 2003Reply With QuoteEdit or Delete MessageReport This Post
Picture of David and Susan
Posted Hide Post
Yes
Both me and Susan would be happy to talk

Dave and Susan
 
Posts: 497 | Location: Co Durham | Registered: 14 March 2007Reply With QuoteEdit or Delete MessageReport This Post
Picture of John Spencer
Posted Hide Post
I sent an Email tp Rachel
 
Posts: 370 | Location: Mirfield,West Yorks. | Registered: 13 October 2004Reply With QuoteEdit or Delete MessageReport This Post
Picture of angiebaby
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I am only at the very beginning of my husband's journey but would be happy to assist.

Angie
 
Posts: 533 | Location: Congleton, Cheshire | Registered: 29 March 2007Reply With QuoteEdit or Delete MessageReport This Post
Picture of Chelle
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Gunna email Racheal.
Being only 23 i can stress to people my age that we are not as INVINCIBLE as we may think and shouldn't be so nonchalant with our health.
I'd love to raise some awareness as i'd never even registered the trials us H&N patients go through.


-~*Great spirits have always encountered violent opposition from mediocre minds*~-
...Albert Einstein
 
Posts: 793 | Location: Hastings, UK | Registered: 01 March 2007Reply With QuoteEdit or Delete MessageReport This Post
Picture of Chelle
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Just a quick update,
Alison emailed me back and they'd like to talk to me further. I hope i can help in some way!


-~*Great spirits have always encountered violent opposition from mediocre minds*~-
...Albert Einstein
 
Posts: 793 | Location: Hastings, UK | Registered: 01 March 2007Reply With QuoteEdit or Delete MessageReport This Post
Picture of David and Susan
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Raising awareness is very important.

From the members of this site do this briliantly

Dave and Sue
 
Posts: 497 | Location: Co Durham | Registered: 14 March 2007Reply With QuoteEdit or Delete MessageReport This Post
Picture of cookey
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I spoke to alison today and she completed the first stage of the interview.I hope as many people as possible will speak up loud and proud and get the profile of this hideous disease right up there with breast cancer. and leukeamia.That way those that come after us will hopefully be more aware and prepared with the course and treatment of this group of cancers
Liz


Love liz

Never take your eye off the ball it may just smack you in the mouth
 
Posts: 632 | Location: Harewood West Yorkshire | Registered: 19 February 2007Reply With QuoteEdit or Delete MessageReport This Post
Picture of Dr Vinod K Joshi
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Thanks to everyone for helping out. Don't forget to say that you are members of the Mouth Cancer Foundation.


Disclaimer: Please see your own dentist/doctor for a proper diagnosis as my words should not, in any circumstances, be taken as dental/medical advice.

"If you see what is small as it sees itself, and accept what is weak for what strength it has, and use what is dim for the light it gives, then all will go well. This is called Acting Naturally."
Lao-Tsu, Tao Teh King
 
Posts: 3266 | Location: St Luke's Hospital, Bradford and Pinderfields Hospital, Wakefield | Registered: 14 December 2002Reply With QuoteEdit or Delete MessageReport This Post
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