Hi Helen........count me in. I'll also help in any way that I can. This is a great site and you can count on us to pitch in and support your work.

hello helen
i would be happy to answer any questions i am a surviver of two mouth cancers each 9months apart 06 and 07 i have had treatment for 9 years pre malignacy leukaplakia and dysplasia and numerous biopsies and radical neck dissection i was nursing for 22 years in the nhs but have been medically retired due to cancer and all my limitations ie arm palsy due to nerves being cut at dissection i am 46
bev

Hi Helen, a good project under the auspice of Leeds University. I think you will find a quite amazing calibre of people here that have been through all sorts and have a huge potential to help others perhaps less fortunate. Appreciating your posting replies to date, well all I can add is wish you the very best. Same for everybody really.

Nigel

Hi Helen, you can count me in also. I have cancer at base of tongue and have just started treatment of radiation and Erbitux a few weeks ago.

I'm still a 'beginner' in using this site, but so far I've found it to be very supportive and informative.

I do have a suggestion though if it can be done. Maybe you could speak to Dr. Joshi and a new category could be added to the forum for your research. That way the different posts you receive will all be in one place and not mixed in with the general chat area. I think this would be beneficial not only to yourself but to others who would like to be kept up to date on this wonderful idea of yours.

All the best on your venture, Cricket

Hi Helen,
Like Angiebaby, I am not a sufferer but a carer / spectator of my mothers SCC of the tongue.

Please feel free to ask.

Helen,

I too will respond to any requests to participate.

Best wishes

Martyn

Hi Helen

I think this sounds a really interesting project. I wasn't sure from your post if you were looking for suggestions from us or if you are going to produce something like a questionnaire to which we can respond to. I am happy to do either (or both!)

I have all sorts of ideas as to why internet forums are so helpful to cancer patients in general and to head and neck patients in particular. Can say more about this if you want, but not tonight as I am too tired, having just got back from a week's holiday.

Regards

Gwyn

Hello all,
As part of my project I am going to attempt to answer the following 3 qustions:
1. Who uses the online support group/forum?
2. Why do they use it?
3. What do they gain from accessing the site?

This may then lead on to what other things people may want, does the site provide what they need etc...
I will leave those ideas with you if I may. I also intend to add a poll (or two) with some quick fire questions!
Thank you
Helen

Hello there again Helen, Perhaps you may like to rephrase your questions to the first person singular, (you instead of they) because I can only speak for myself and why I use the forum, see what I mean?

Following a very helpful suggestion from angiebaby I would like to make a slight change to my objectives:
(I have also added a poll with an initial set of questions)

--> Why do you use the online support group?
--> What do you gain from accessing this site?

Hopefully my questionnaire should answer the original question 1

Thank you
Helen

Dear Victor,
Just to let you know that I saw 7 doctors before they new what was wrong with me.
Big Bear Healing Hugs Garance
R questions, I would answer anything which may be relevant.

Hi Helen (and everyone else),
I'm new to this site but would be happy to help if I can. I was diagnosed and treated two years ago and have used the internet off and on since then but didn't join a forum until now so I don't know if I'd be any use to you.
Good luck with it all.
Dub