Hi all

Still experimenting with food since no saliva

If i return to work or would like a day out somewere with my wife any ideas on foods i could eat while out for the day

Have not really been anywere as i seem to be eating all day to get just over 2000cals

Much appriciated

Dave and Sue

Hello Sue and Dave, I'm not sure just what you are able to eat but when I go away for the day I fill a 'large mouthed' thermos flask with soup and make up a scandishake. If you are able to chew you could take some bananas, avocados etc both are filling, full of goodness and easy to carry about.
That said, most places will serve soup or a soft meal (pasta etc) If you are like me and don't wish to eat in front of strangers, I fill a cool box with drinks, yogurts, milkshakes etc and take a flask for the hot stuff (I also have a thermos that plugs into the cigarette lighter of the car which I find very useful - you can buy them from camping shops) I have to say that going out now is more of an ordeal than when we had to pack up the car when the children were babies!!!! Where there's a will..............Enjoy!

Dear Brenda
Thanks for replying
At present only able to eat weel mashed sloppy food with plenty of sauces gravy youguts sweet things

at present not eating in public

with no saliva and cleaning my teeth its a bit of a problem and confidence

Regards
Dave and Sue

hi Dave and Sue,
It is difficult to go out and eat in public,but as Brenda says soup is readily available in most places.
I still struggle with pasta so that's a no for me.
It was not til I had the cancer that I realised how much social life is about eating and drinking. My husband was off work all last year so people would say " great you can go out together and have meals out" no way!
I have found I can just about eat a baked potato with copious amounts of butter, sandwiches are still a no.
I am working now (driving instructor) but I shape my day so that I can come home and eat, otherwise I wouldn't bother to have anything.
Holidays are another story- I am off to Tenerife next week so I know I'll lose weight again because the restaurants are generally filled with steak and chips! I used to hate fish, soup and eggs but these days that is what I mainly eat.
By the way I discovered last week I can taste cinammon, fantastic! I have started making cinammon cakes which I eat with gallons of tea.
Finally I have got over 8 stone!
Anne

Dear Anne w
Hope you enjoy the holiday we were there in Nov last year and good to see you back at workand over 8 stone

At present can not see us going away for a while need for me to be more possitive

Breads a no no i know what you mean about going out for me i think it might be a while this no saliva thing really knocks what you can eat

can eat all sweets custard youguts etc but would like to eat more savoury and bigger portions but i have lost about 2 stone and just holding my weight

cant seem to get much more than 2000 cals a day without eating a load of rubbish

enjoy your hols again
let us know how it was

cinammon in america there did a sweet called cinabom with loads of warm icining on top
Dave and Sue

Hey guys!
Sorry it's me again!

I've eaten out a couple of times... & i skim over the menu eliminating 95% of the meals i cannot of have!
Went to a lovely gastro-pub with work collegues and for starter i had Saute garlic mushrooms - nice strong flavour, soft & easy to swallow. Had to give away the garlic bread though! For my main course i had sea food chowder which was fab cuz i could also use a spoon which saved the knife & fork embaressment!
When i'm out i avoid carbs - cuz they never come with enough sauce to swallow them down.
Salads are ok, & i'm just being able to tolerate dressings. Sausage, mash & extra gravey is good. Pie, mash & extra gravey is ok. Fish & sauce. Just make sure you have water to hand. Often i'll take a mouthful & follow it with a sip of water. Then ontinue to chew - using the water as substitute saliva.
Holding on to the weight is tricky! I've felt so bloated with my periods coming back this week that i've lost my appatite & haven't been dunking my jaffa cakes every day! Believe it or not, 4 jaffa cakes is all that stand between me maintaining my weight & me loosing weight!

If there's anything else i try i'll let you know!
Take care guys!

Hi Michelle
Never say sorry we look forward to your replys they do help

all the food you mention seems so far ahead but it is something to aim and look forward to

the jaffa cakes tip im managing 4 a day
its only 8 weeks since chemo and rt and still a few ulcers there

good to see you out and about

we registered for the walk but i said to Sue i will never make it as eating out would be a nightmare

but still trying different foods



Take care
Dave and Sue

Michelle,

Forgive my ignorance but I have seen it mentioned a few time, what is the knife and fork problem?

D & S October is miles away, you will be fine, see you there.

Thanks Angie
i will try

Dave and Sue

Ange..
Try eating mash potatoe with a ltr of gravey with a knife & fork *lol BUT imagine people faces when you get out the spoon to eat it in a restaurant

I prefer eating with a spoon

Dave and Sue

OK, dosey me, didnt think about that!

A xx

I have to eat with Teaspoon only thing I can get into my mouth but GRAVY a definate NO forme it tastes like spoonfuls of salt!
I am ok with sauces like chicken inn white wine or similar.

PAUL

Paul, some days i can't taste salt in my food AT ALL. Other days, like you, i may as well be drinking salt water.
i find the lack of saliva a problem with alot of white sauces as they tend to just ciat my mouth. Unless i add something to thin them a bit. Been adding a little milk to my cream & white wine sauce. & adding milk to my carbonara sauce helps too.

Hi Paul And Michelle
Hate the claggy mouth thing

Dave and Sue