ive just looked into the chatroom for the 2nd time theres no 1 in there whats going on

Hi Nango
I've just peeped into the chat room but I know you will be long gone by now. It's actually 1.09am on the 13th August ~ about 4pm on the 12th there, I guess. There is never anyone in here when I look either.
Have a great day.
Deborah

Hi Deborah, I have just tried to chat for the first time. There was no one there. I will be finding out tomorrow if I have mouth cancer. I hope that everything is ok with you. Here's hoping!

Angela

Hi Angela
Well I guess by now you have your results. I hope everything went well for you. There is always someone on the site to 'talk' to even if you don't have any joy in the chat room.
Due to the time difference for us, it just isn't practical for us to use the chat room at the time available.
Keep your chin up and keep posting.
Cheers
Deborah

Hi angela how did you get on ?

REMINDER:

This forum is for questions about the 'LIVE CHAT' facility which is accessed under the 'GO' drop menu. You can tell one another to meet there whenever you choose to, but this is a normal forum and you are better off posting your messages in the other forums.

Just when I need someone to chat with there is no one there....

My husband was just Diognosed with Carcinoma, its has been along year and 1/2. He found a lump on the right side of his neck when he was shaving, in may of 2007. HG went to our family doctor and she sent him to a specialist and it too 5 mths before he got to see him...when we went into his office he look at us and said I don't even know why your here I'm not the right doctor for the type of problem...we were dumbfounded....shocked...This specialist then booked him for a head and neck spec..which we waited another 2months..Xmas around the couner, he went to see the head and neck spec and had a biopsy done...the Dr called us two day before New Years, and told us to enjoy the rest of our holidays that the mass was clear...however it would need to be removed and he would be put on a waiting list...so 6months later June 25 he had a lump removed and every thing went great...he healed quite well...until the shocking call on July 25 that the spec..wanted to see him..we went in and they told us that the mass they removed had a tumor inside which was the secondary cancer. You could have knocked me over with a feather...the next step was a second test to see if they could locate the primary...and remove a toncil....well they removed the toncil and part of the base of his tongue. Which was the primary cancer. He is starting at the cancer center for treatment of Radiation and Chemo...I"m gong out of my mind and don't know what to expect...I'm so angry..not at the word cancer but at our family dr..who I might add is not longer...this could have be done and over with I'm scared out of my mind...sorry for the book but I need to get come thing off my chest...My shoulders feel I have a 500 lb head sitting on it..thanks for listening....

Hello Linash & welcome, so sorry to hear your news. The diagnosis is bad enough to hear, but to have to wait so long is criminal.
You will both get through his treatment, which is tough, but as the others will tell you, "Doable"
You will have many questions to ask, dont hesitate to ask us anything, because of time differences, answers may be slow initially, but theres usually someone online..
Can you move your posting to "Introduce yourself" where you are more likely to get quick replies.
Take care of yourself, do you have a good family support system, we carers need lots of support also. Fran,

i am sorry to hear about your hubby, i too had cancer in my mouth, my cancer was on my tongue, and i had sugery in march (2008) to remove it. the surgery went great, i had a difficult time with swallowing right after and i used a feeding tube for a few weeks (this feeding tube was in my nose, so it was easy to remove). then hell on earth. i started radaition and chemo treatments, in early may. the chemo i could handle, being sick from it was nothing compared to the radaition. the first few weeks are nothing, a breeze, then, you lose your taste, oh and before you can start the treatments they make you get a feeding tube put in (this feeding tube goes in your tummy). the first thing i lost was my taste of salt. then everything tasted nasty. you are tired, so tired, your throat will hurt, mine didn't hurt so bad that i felt i needed the feeding tube, but in the end i was glad i got it (and still have it). your mouth will get sores in it, your ears will ring, and you lose your voice, you have just a hoarse whisper. you skin will turn dark, almost black, it will burn your skin, your neck will have sores on it. i had to do 31 treatments of radiation, when i had 4 treamtents left they (the radaition doctor) made me take a week n half off becasue my neck was in such a terrible shape, even the backs of my ears had sores on them. they will tell you that the radaition doen't make you sick, but it does, you will take meds to prevent the sickness. but, there were times i barely made it out of the treatment room before i was throwing up. some days we'd stop on the way home 5 or more times so i could throw up. then all day at home, i was on an all liquid diet, if you can't afford the food or you have no insurance, the hospital will help you get the canned food. they will tell you that you will regain your taste in 2 weeks after the treatment ends, and that you will be able to eat and you won't even know you were ever sick. not ture, it has been 10 weeks for me since my treatments ended. my taste started coming back at about 8 weeks (still no taste of salt and i love salt), my voice started coming back about 4 weeks after. it took my neck 8 weeks to heal completly. my mouth is still not healed and my throat still hurts and is swollen, i can not eat solid foods yet,i do try and drink water and soda and sometimes cream of soups (if your mouth is sore stay away from tomato based foods). most foods burn the back of my throat where it is still raw from the treatments. i have trouble swallowing, i choke easily, but i keep trying. i don't want to have this feeding tube forever. even though my chemo doctor said some people never get rid of the feeding tube, that they can not eat food ever again. i want to eat so bad, i go to family gatherings, and i sit and watch everyone else eat and oh how they take it for granted. i have cried and told my hubby that if i had to do this over again, i'd not do the radaition. i know several people that had mouth cancer and they have all said it takes a long time to get over the treatments. so, i wait, and i hope, and i pray. maybe some day i will enjoy a big sloppy bbq pork sandwich again. good luck to you and your hubby. i hope all goes well for you.

hi my dad has just recently been diagnosed with mouth cancer but he has made me promose not to tell anyone other than immitiate family

Hi Dixie

I've always believed that trouble shared is trouble halved. I hope that you feel free to discuss your dad's situation here on the site. You'll probably find ways to look at and deal with it that hadn't occurred to you before. If nothing else, you'll have a place to vent. We've all been where you are.

I understand honoring your dad's wishes not to tell anyone but immediate family what's going on, but this is a place where the more you tell us, the more we can help both of you.

Has your dad had surgery? Chemo? RT? Neither of you is alone in this.

Julia and Flappy the tongue flap

This message has been edited. Last edited by: Julia,