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NICE have given a preliminary negative recommendation for the use of Erbitux + radiotherapy.
As some of you may have heard, NICE has recently published the first draft of its guidance on the use of Erbitux in combination with radiation therapy for the treatment of locally or regionally advanced squamous cell carcinoma of the head and neck.This initial draft recommends that the treatment should NOT be funded on the NHS. As we all know, there have been very few developments in the treatment of head and neck cancer over the years, so any treatment options are very important to those who could benefit. Furthermore, Erbitux has been approved for use in Scotland as well as Europe. So should this draft guidance remain unchanged, then people with head and neck cancer in England and Wales will be denied access to a treatment which is available in other areas of the UK. I am sure that you will feel as strongly as I do that it is important that we speak out on the behalf of patients who have experienced cancer of the head and neck or who may be affected by it in the future. 24 of you voted for it being made available when I sought your views for submission to the Scottish Medicines Consortium which has approved it for patients in Scotland. The draft is open to public consultation until 5pm on 26th February. So if you believe, like me, that it is important for patients to have access to this medicine, please register your views on this to NICE directly through this link. All the feedback on the draft which is submitted to NICE during this time is taken into account by its committee before the Guidance is issued. Additionally, any comments that you would like to share with the Mouth cancer Foundation on this issue would be most welcome and will be taken into account in the charity’s response to NICE. Best wishes Vinod This message has been edited. Last edited by: Dr Vinod K Joshi, Disclaimer: Please see your own dentist/doctor for a proper diagnosis as my words should not, in any circumstances, be taken as dental/medical advice. "If you see what is small as it sees itself, and accept what is weak for what strength it has, and use what is dim for the light it gives, then all will go well. This is called Acting Naturally." Lao-Tsu, Tao Teh King |
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C,mon everybody, lets get this signed & off to this dreadful committee who hold lives in their hands. Thanks Vinod for bringing this to our attention.
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My father was on Erbitux and it made his face break out like acne in the end this type of treatment did not work. This treatment does not work on all people unfortunatley
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I had Erbitux and radiation 12 weeks ago. I interfaced with other head and neck cancer patients that were ahead of me in recovery at a time when Erbitux was not available. These patients went through horrendous complications from regular chemotherapy. The side effects of Erbitux are minimal in comparison. The statistics in the U.S. for 5yr plus survival outweigh the original therapy.
Any treatment is not 100% guaranteed but if the regimin and testing that our government puts new medications through has found this to be more beneficial statistically I cannot understand holding back on the release in England. What does this committee have to substatiate non approval? Sandra |
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Hello Sandra
Our overall view on the draft is that the NICE committee has not looked at this in a pragmatic way or from the patients’ point of view. By denying access to this treatment, NICE does not truly understand the issues that are important to patients. As NICE points out, the trial involving Erbitux resulted in robust findings that are very significant to patients in England and Wales with regard to the fact they will live months longer and will have an alternative should they not be able to tolerate chemoradiotherapy. NICE also notes that the treatment is cost effective. We need to appeal to health professionals and patients to feedback to NICE on this draft guidance, which if unchanged, would deny access to the only new medicine in Head and Neck Cancer in many years for patients in England and Wales. There are a small number of patients with Head and Neck Cancer who are set to lose a large amount if we do not act now. Best wishes Vinod This message has been edited. Last edited by: Dr Vinod K Joshi, Disclaimer: Please see your own dentist/doctor for a proper diagnosis as my words should not, in any circumstances, be taken as dental/medical advice. "If you see what is small as it sees itself, and accept what is weak for what strength it has, and use what is dim for the light it gives, then all will go well. This is called Acting Naturally." Lao-Tsu, Tao Teh King |
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I had to go ont never had Erbitux so cannot comment
But when i had Radiotherapy and my mouth was blistered and bleeding plus the swelling they still forced on the mask I asked many times for omething to reliee the pain specially in my mouth you would have thought I was the only person having problem with radiotherapy apul |
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I am a member of the Oral Cancer Foundation Group and i have seen this treatment mentioned in posts many many times by oral cancer sufferers in the United States.I find the differences between available medications and treatments quite astounding ,and i if am not mistaken drugs have to undergo rigorous testing before they become available for use in America.Surely this must mean that it is of benefit in treatment of oral cancer and as such should be available to everyone no matter what country you live in.
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ASCO: Cetuximab Plus Platinum Extends Head and Neck Cancer Survival
CHICAGO June 2 2007
See also: Study: Erbitux prolongs cancer survival This message has been edited. Last edited by: Dr Vinod K Joshi, Disclaimer: Please see your own dentist/doctor for a proper diagnosis as my words should not, in any circumstances, be taken as dental/medical advice. "If you see what is small as it sees itself, and accept what is weak for what strength it has, and use what is dim for the light it gives, then all will go well. This is called Acting Naturally." Lao-Tsu, Tao Teh King |
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Thanks to all who supported us. Best wishes Vinod This message has been edited. Last edited by: Dr Vinod K Joshi, Disclaimer: Please see your own dentist/doctor for a proper diagnosis as my words should not, in any circumstances, be taken as dental/medical advice. "If you see what is small as it sees itself, and accept what is weak for what strength it has, and use what is dim for the light it gives, then all will go well. This is called Acting Naturally." Lao-Tsu, Tao Teh King |
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That's fantastic!
Lets hope they see sense! -~*Great spirits have always encountered violent opposition from mediocre minds*~- ...Albert Einstein |
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Appraisal Committee's preliminary recommendations
Note that this document does not constitute the Institute's formal guidance on this technology. The recommendations made in Section 1 are preliminary and may change after consultation. Ref: http://www.nice.org.uk/guidance/index.jsp?action=folder&o=39184 The key dates for this appraisal are: Closing date for comments: 4 March 2008 Next Appraisal Committee meeting: 12 March 2008 Related News:
This message has been edited. Last edited by: Dr Vinod K Joshi, Disclaimer: Please see your own dentist/doctor for a proper diagnosis as my words should not, in any circumstances, be taken as dental/medical advice. "If you see what is small as it sees itself, and accept what is weak for what strength it has, and use what is dim for the light it gives, then all will go well. This is called Acting Naturally." Lao-Tsu, Tao Teh King |
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The Mouth Cancer Foundation Online Support Group
Mouth Cancer Forums
Members Forums
Medications, Treatment, Procedures
Erbitux®: make your voice count!
