Hi

Anyone taking extra vitamins

What about Beta-Carotene and Selinium


The bristol Care center as them in there leaflet

Any comments

Dave and Sue

David & Sue,

I take general multi-vitamins because my diet isn't very varied. I also take chrondroitin & Glucosamine for my joints, which were painful after the chemo (high dosage Cisplatin).

Thanks jenni
I am thinking about topping up because of my diet to

Dave and Sue

Anyone advive on selinium
Regards
Dave and Sue

Hey guys!
I take magnesium as it helps a little with the nerve damage from chemo (it reduces the tingling sensation slightly).
As for the Selenium you can find it in the following:

potato, baked with skin, 7 oz (903 µg)
tuna, light, water packed, 3 oz (69 µg)
pork loin, roasted, 3 oz (32 µg)
egg, 1 (31 µg)
sunflower seed kernels, roasted, 1 oz (22 µg)
top sirloin, lean, broiled, 3 oz (28 µg)
turkey breast, 3 oz (27 µg)
wheat germ, 1/4 cup (23 µg)
chicken breast, roasted, 3 oz (22 µg)
whole wheat bread, 1 slice (10 µg)
cashews, roasted, 1 oz (3 µg)

Some say it helps prevent cancer but i'd be more than sceptical at those claims.

I think Jenni's right with the good all rounder. My diets quite varied now & I was warned about taking specific vitamins because too much isn't good for you!

All the best,
Michelle

Hi Michelle
Thanks for that info

I am so pleased that you are eating well

Still experimenting with foods (saliva a prob but you know all about that)

have managed porridge and weetabix fortified
poached egg in a sauce

Some soups

Sweets not a problem but would like to introduce more savoury foods

Problem with the bits in foods

Michelle does your mouth seem to hold on to the food.

could not eat scrambled eggs or fish pie

been to hospital today prob with my back tooth and gum
dentist appointment tommorrow 9am

at present counting cals for dietician everything fortified

are you still fortifing food

will get there

Thanks for support
Dave and Sue

Dave,
My mouth always hangs on to creamy/cheesey sauces. Today i had shepards pie washed down with a pint of water cuz the mash potatoe stuck to the inside of my mouth. So for every mouthful i was having a sip to wash it away. But it was yummy! Usualy it wouldn't have been worth the hassel but it was nice!
Every week i'm discovering new stuff i can manage!
Cheese & onion omelettes cooked in butter are the "meal of the moment" for me!
My problem is i discover something i can eat - thjen i have it like EVERY day for 2 weeks & get completely fed up with it! Salads for lunch are another example... You can get anything down with cucumber!

Sunday we had Bar-B-Q for my step dad & i made my throat so sore trying to eat the chicken wings and lamb chops!
It's so frustrating i know!

Also, i'm still battling with the oral thrush, so my tongue takes on the colour of whatever i've been eating - NICE!
It's funny though - i can't remeber what a normal mouth feels like anymore!

Hi Guys,
Same problem with the holding on to food. Tried some chicken noodle soup earlier and am still finding noodles even though I rinsed well afterwards. My problem is from where the jaw was removed, there is no gum on that side now, just sort of a deep trough and because it is also numb I can't feel if any thing is stuck there. I usually have to revert to my little finger to dig any out or to push food over the back of my tongue when I can't swallow it. I'm sure you really needed to know that. Yuk!

michelle, i also cannot remember what a normal mouth feels like anymore, i am having another biopsy 27th june this will be my 10th bout of surgery in my mouth over 7 years when will this all come to an end i am really scared this time after my cancer diagnoses last august. i get panic attacks each time i have to visit the hospital and i have to work there too!thanks for listeningx

Bev,
I can't imagine how you must feel.
Your life on pause every time you have to wait for biopsy results.
I suffer with anticipation sickness from chemo, so whenever i have to go to the hospital i'm often sick in the car. Brighton hospital was on the news yesterday as they'e built a new state-of-the-art childrens hospital. But just looking at where i uised to have chemo, down the road, was enough to set off the gag reflex!
Let us know how you get on girl.
We'll be thinking of you!
Michelle x

Hi Guys
Michelle your doing great chicken wing
will try ommeleete could not manage scambled eggs the other day taste buds kinda funnyn

i hope your thrush gets better soon sounds like it does not stop you wanting to eat do you still count the cals

Bev
hope everthing is allright fingers crossed

Susie

Looks like everyone as one problem or another with food

they all say it will get better

Regards to you all
Dave and Sue

thanks you guys for all your support , you really are all a great bunch of friends . this last two weeks has been really hard for me not knowing if this is a reccurence after nine months i have been on every internet site for scc too much detail i think! does everyone else search and search for answers?

Hi Bev

Yes all the time, but sometimes think that a little learning can be a dangerous thing. Do you know what stage your cancer was and was is just in your tongue.

Will be thinking of your next Wednesday.

A

hi angie
yes it was just in tongue stage 1 but ulcer has appeared in gum , i had graft from leg to tongue last september hoped it was the end of it see consultant every month

Hello Everyone
I take my hat off to each of you. You all have battles and use your successes to reduce the hardship and help someone else. Well done to you all.
Bev, how I wish I could be like you and have so many questions. Everyone keeps saying "Ask questions". We don't know a stage for Trevor's cancer, they can't find the primary so I don't know what else to ask. The drs seem to be frank with us and I wonder what more we can do anyway.
I wonder if not finding the primary is a good or bad thing, they say that sometimes they never do. Why? Then I don't know if I want to know anyway and we will just deal with each situation as we are confronted with it. Is this the best way to be??? I don't know and I guess it's OK to deal with things as it is right for you, so search away and good luck.
On the subject of thrush ~ my Mother always swore by the use of glycerin and I remember using it for one of my babies when he had a terrible dose as a result of anitbiotics. Maybe that might help someone.
Good luck to you all.
Warm wishes
Deborah