Please may I draw your attention to this conference – the Early Bird rate lasts only until end June. There are bursaries available for patients/carers/researchers. If you are unable to qualify for a bursary, MCF would be happy to fund patients/carers who have had direct experience of living with an unknown primary to attend the conference and ensure that the head and neck cancer patients views are also heard.

quote:

Overcoming the Unknown

"New Approaches to the Diagnosis and Treatment of Carcinomas of Unknown Primary "

15 October 2009

Keynote speaker
F. Anthony Greco

Please click here for more information and to register for this conference

Bursaries
Twenty Bursaries covering the delegate fee have been made possible by Matt’s Trust Fund for Cancer, in memory of Matt Hoyle who died with CUP in 2005 aged 26. The purpose of the Bursary is to encourage conference attendance by patients, carers, those affected by CUP; or researchers with an interest in CUP, who are not funded by an organisation. For an application form eMail: john@cupfoundjo.org copied to dcs@delegate.uk.com and complete the registration form above. Please put "Bursary" in the eMail subject line.

Best wishes
Vinod
Chief Executive
Mouth Cancer Foundation

This message has been edited. Last edited by: Dr Vinod K Joshi,

Dr. Joshi - coming late to this thread but I note in one of your earlier posts that you were seeking to be contacted by patients with an occult primary.

That was my diagnosis back in March of this year, and I've had 2 surgeries. #2 was a modified radical neck dissection, after #1 in January (at that point they still though they were dealing with a Branchial cleft cyst) followed by 31 days of IMRT treatments but, thankfully, no chemo (there was apparently no extra-capsular spread, if that's the word I want, and they felt confident that the surgeries removed the two cancerous lymph nodes). The RT ended 3 weeks ago today.

My medical oncologist tells me that because I tested positive for HPV (and of a certain sort or grade.... was it type 16?.... that is the suspicious one for these types of cancers) he feels that it was more than likely the, or perhaps a cause of my disease. I've never been a smoker, although I have always drunk alcohol as an adult.

Please let me know if there are any other details of my situation you'd like to know about.

And more to the point thank you so much for providing this wonderful internet resource for all of us. I realize that your readership is predominantly UK-based, but we're also fans here across the pond.

Best.
david

quote:

Dear colleagues,

I’m just writing to remind you that consultation on the draft guideline for Metastatic malignant disease of unknown primary origin closes at 5pm on 1st February 2010.

Below is the relevant link where you will find all the instructions and documents needed in order to get involved and make your comments:

http://www.nice.org.uk/guidanc...ction=folder&o=46491

I’d be grateful if you could ensure all responses are provided using the comments proforma (ensuring all relevant fields are completed, including your organisation’s full name) and forward this electronically by 5pm at the latest on Monday 1st February to: UnknownPrimary@nice.org.uk

If you have already submitted your comments - many thanks

Take care

Emma

Emma Banks
Guidelines Co-ordinator
National Institute for Health and Clinical Excellence
Level 1A | City Tower | Piccadilly Plaza | Manchester M1 4BD | United Kingdom
Tel: 44 (0)161 870 3102 | Fax: 44 (0)845 003 7785

If any members wish to comment please either do so as individuals or forward them to me to collate as an MCF response.

Best wishes
Vinod