Hi
Iv had severe pain in my collar bone and shoulder for 10 years now but i am fed up of pysio so i have decided to go private and my gp referred me this week

i was always told it was a side affect

Dave and Sue

Get the gp to refer to a specialist

Pain is becoming unbearable and spread into my head where it is like an awful migraine. Still no scan organised. Rang the scan dept. at hospital but they have not yet made me an apopintment. Went to see GP as consultant not available and he has given me tramadol and damazipan and codeine - it helps me sleep but is not impacting the pain much. Having to take time off work now as I cannot function normally - well I've never been able to function normally even befor the cancer - that goes without saying - but this different.

I know I am just having a whinge - sorry but to paraphrase

a problem shared is a ... bloody nuisance for the person you are sharing it with

I hope I am in more pain than you are because if your's is worse you need lots of morphine!

All the best and I will report results of scan when I have them. It will be such a relief if they say it is not cancer. I know that will not end the pain but the worry is just adding to it.

Tony

Tony it is totally unacceptable that they have not made you an appointment for a scan yet - you posted nearly 10 days ago saying they were arranging one. Is there not a coordinator at the cancer centre - a nurse specialist - that can get on the case for you? If not I would get onto your local PALs or MacMillan and ask them to fix it for you. It must be awful being in such pain without explanation. Hope the drugs start working soon.
Cathy

Been back to the docs and the hospital head and neck pain nurse has spoken to me by ophobne so at least something is happening. Been told to take oromorph, paracetemol, ibroprufen and damazapam - hopefull that will control the pain. I just hope someone will eventually find a way of stopping it altogether - not sure I can live on this regime forever!
Love a good moan! Hope you are all well and coping. Best wishes to you all

Tony

Hello Tony

Sorry to hear about the pain you are having. Hope they figure out why you are having it. We can't have you permanently drugged to the eyeballs ; it would terrify the neighbours!

Best wishes

Vinod

Hi Tony,

I am glad you have someone batting for you. I think its awful to make you wait so long when you are obviously anxious. We usually get notification of scan appointments 3-5 days after a consultant decision and they always seem to try and get them in within the 2 week time frame which I presume is a target...

Hope the new drugs give you some relief, and that you get an appointment within the next week.

Best wishes,
Cath

Hi
Just to keep you all updated in my on going soap. I have never been in such pain and had 14 days in bed with painkillers that didn't touch it. Still not had my scan but was at the hopital today where the great Col. B sent me immediatelty for an x-ray and discovered one severely dislocated clavicle. This is not unusual apparently, but unusual to have this much pain. I am still awaiting the scan but he will try and move it forward. I now also have to see an orthopedic surgeon to see about putting the clavicle back. Still in great pain but he has given me new meds and if they don't work I go into hospital on Friday. I think they will (I took a bag with me today just in case yjhey wantyed to keep me in and would have been happuy to stay which gives you an idea how much pianI am in!)
Needless to say I hope I am in more pain thay you and yours

Tony.

quote:

Iv had severe pain in my collar bone and shoulder for 10 years now

Hello Tony
You don't say you have had this dislocated clavicle for that long and undiagnosed by our good ol' NHS!
Best wishes
Vinod

Bloody hell Tone...what have you been doing? Never heard of that one before. Hope they sort it out double quick - you have been in too much pain for too too long.

Warmly,
Cath

Hi

Well I am signed off from work again and awaiting hospital boffins to figure out what to do with me - when they get around to it of course!

They tell me a dislocated clavicle is not uncommon afgter the op I had and happens quite a lot. Anyone else had it?

I waited four weeks for a scan - haven't had results yet. Waiting to see specialist orthapedic surgeon now. Meanwhile everything is agony - typing this hurts.

Managed to get a terrible cough on top of everything else and can't speak for coughing. Brain phased on pain killers.

What a life. Anyway I am hoping once they get their heads together they will sort me out quickly - may as well be optimistic!

Not up to do anything as a result of everything so I am literally a couch potato trying to remember to take medication! Mustn't grumble of course - just like a bit of a whinge!

Ii will let you know as things IMPROVE. As always I hope I am in more pain than you and yours

Tony

Hi Tony
I think it's a given that you are definitely in more pain than most so despite the best wishes and intention behind your closing tag line, I think you need to change your wish!
What a shitty, tough time you're having. I hope they soon get on top of your woes and you're in considerably less pain than everyone else.
Cheers
Deborah

Hi i suffered from pain in neck and shoulder afer neck disection and chemo and radiation twice
it as been 12 years now 10 for the first and 2 for the second

my gp refered me to the hospital pain clinic were he perscribed voltoron.amitripuline,
and tramadol and the horse drug ketamine

it worked for me

Regards
Dave and Sue

Hello Dave and Sue

Perhaps a device like the PainGone Pen might help.

Best wishes
Vinod